Our RARE ACTIVist programme is aimed at all those wanting to assist us in raising funds and awareness for our cause, our patients and ultimately the rare disease community. Be it volunteering at an event, hosting a family day, or partaking in one of our many sporting teams and using your mobility for the advantage of others, there is a always a way for you to get involved as a RARE ACTIVist.

#Care4Rare

Sign up as a volunteer, list your skills and the area you reside in, and we will get in touch when we are having events in your area, such as:

  • Rare Bear distribution

  • Hospital activation

  • Family day events

  • Sporting events

  • Stationary/ nappy drives

  • Patient assistance

#Run4Rare

The official running/walking initiative for RDSA, which allows members of the public to raise awareness and funds for rare disease patients, using walking/running events as a platform.

  • MTN Walk the Talk with 702

  • Old Mutual 2 Oceans Marathon

  • JURA

#Swim4Sadie

In loving memory of Sadie Penn, Swim4Sadie aims to raise the profile of rare conditions as well as create a platform for fundraising to assist families affected by rare diseases using swimming as the main focus.  

  • Midmar Mile

  • SunCity Swim

  • Endurance swimming with Madswimmers.

#Ride4Rare

Our fundraising flagship, is a cycling initiative which tackles both road and mountain biking events across the country. Since its inception in 2012, we have had over 1000 cyclists #Riding4Rare. 

 

  • Telkom 947 Cycle Challenge

  • JUMA 

  • Cape Town Cycle Tour 

#Raise4Rare

Each year, people across the country host a fundraiser or event to benefit RDSA, and help us achieve our objectives. 

 

  • Cake Sales

  • High Teas

  • Concerts

  • Fun Walks

  • Birthday Pledges

  • School Fetes

Disclaimer and Policies: Learn more about our site, how we use your information, and using our content.

Privacy Policy: Rare Diseases South Africa (RDSA) respects your privacy and is committed to protect the personal information that you share with us. Our database contains private information including name, address, contact information and medical information. If you provide any private or non-public information it will be restricted to site administrators and individuals on a need-to-know basis and will not be sold or given outside of RDSA without consent from you. 

Disclaimer: Rare Disease South Africa (RDSA) is a resource for sharing information and support. RDSA members, employees and executive board members do not offer medical advice. The information provided on the RDSA website, newsletter and message board are designed to support, not replace, the relationship that exists between a patient/RDSA member and his/her physician. Please verify any information you receive from RDSA with other sources and with your licensed health care provider. Decisions regarding medical care should be made with your healthcare provider. Consumers should never disregard or delay seeking medical advice due to the content of this website. The RDSA executive and medical boards, volunteers and moderators do not assume, and hereby disclaims, any and all liability to any person or entity for any claims, damages, liability or other loss including, without limitation, any liability for injury or other damage resulting from any use of, or reliance on, this service or from the posting of any content or material by any third party.

© Rare Diseases South Africa