Our RARE ACTIVist programme is aimed at all those wanting to assist us in raising funds and awareness for our cause, our patients and ultimately the rare disease community. Be it volunteering at an event, hosting a family day, or partaking in one of our many sporting teams and using your mobility for the advantage of others, there is a always a way for you to get involved as a RARE ACTIVist.


Sign up as a volunteer, list your skills and the area you reside in, and we will get in touch when we are having events in your area, such as:

  • Rare Bear distribution

  • Hospital activation

  • Family day events

  • Sporting events

  • Stationary/ nappy drives

  • Patient assistance


The official running/walking initiative for RDSA, which allows members of the public to raise awareness and funds for rare disease patients, using walking/running events as a platform.

  • MTN Walk the Talk with 702

  • Old Mutual 2 Oceans Marathon

  • JURA


In loving memory of Sadie Penn, Swim4Sadie aims to raise the profile of rare conditions as well as create a platform for fundraising to assist families affected by rare diseases using swimming as the main focus.  

  • Midmar Mile

  • SunCity Swim

  • Endurance swimming with Madswimmers.


Our fundraising flagship, is a cycling initiative which tackles both road and mountain biking events across the country. Since its inception in 2012, we have had over 1000 cyclists #Riding4Rare. 


  • Telkom 947 Cycle Challenge

  • JUMA 

  • Cape Town Cycle Tour 


Each year, people across the country host a fundraiser or event to benefit RDSA, and help us achieve our objectives. 


  • Cake Sales

  • High Teas

  • Concerts

  • Fun Walks

  • Birthday Pledges

  • School Fetes

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