Rare News

RECOGNISING RARE DISEASES – ACCESS AND ACTION

September Childhood Cancer Awareness Month

FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES

Media Release: Availability of Medications / Panic-Buying

How to Fundraise Like Your Life Depends On It...

Understanding Vitiligo

Lockdown Limbo: Overcoming the 'Blah' State of Mind

Burden of Rare Diseases in the USA almost $1 Trillion in 2019

Invisible Value Syndrome

Rare Lives Matter