Statistics indicate that 1 in 15 South Africans are affected by rare diseases. Despite this, the rare community are severely under-represented and remain vulnerable from a medical and policy perspective.
Today, RDSA brings together international best practice and local medical innovation, driving a collective voice and playing a fundamental role in bridging the gap between vulnerable communities and medical advancement, working towards providing a better tomorrow for those living with rare diseases.
who we serve
Equality, Care, Dignity and Empowerment
A South Africa where those impacted by rare diseases and congenital disorders access life-saving treatment and supportive care for improved quality of life.
Bridging the gap to improved quality of life for those impacted by rare diseases and congenital disorders through advocacy and empowerment.