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This media toolkit exists to ensure that information disclosed is accurate, comprehensive, authoritative and relevant to all aspects of the Rare Diseases brand.

Adherence to this toolkit is intended to provide an effective framework to working with the media to:

  • Increase public awareness and understanding of rare diseases
  • Promote a positive public image of Rare Diseases South Africa and the work we do
  • Tell your story – one that is honest and emotive – providing real-life examples living with a rare disease in South Africa

Finding Your Voice - Media Toolkit

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