• ABOUT US

    • OUR PURPOSE
    • MEET THE TEAM
    • MEET THE BOARD
    • FAQs
    • RARE RESEARCH

  • EVENTS

    • RDAI STAKEHOLDER SYMPOSIUM
    • WEBINARS
    • RIDE JOBURG

  • RESOURCES

    • RARE ASSIST
    • PATIENT VOICES AMBASSADORS
    • PATIENT ID CARDS
    • COUNSELLING
    • GENETIC COUNSELLING
    • RESOURCE HUB
    • COMMUNITY HUB
    • SUPPORT GROUPS INDEX

  • MEDIA

    • BLOG
    • RARITY MAG
    • VIDEO GALLERY

  • SHOP

  • CONTACT US

  • More

    Use tab to navigate through the menu items.
    RDSA-Logo-Colour-RGB-HR.jpg
    PATIENT |
    CAREGIVER |
    DOCTOR |
    SUPPORT GROUP |
    RESEARCHER |
    CORPORATE MEMBER
    | PRESS
    JOIN
    GET INVOLVED
    DONATE
    Discussion Groups
    Resources
    Patient ID Cards
    Shop
    Support Groups
    Webinars
    Events
    Forum
    Blog

    Forum Comments

    I Have No Forum Comments Yet
    Check back soon.