top of page
WHO WE ARE
ABOUT US
OUR PURPOSE
WHAT WE DO
FAQs
EVENTS
WEBINARS
RESOURCES
RARE ASSIST
PATIENT VOICES AMBASSADORS
PATIENT ID CARDS
COUNSELLING
GENETIC COUNSELLING
LAB HUB
RESOURCE HUB
COMMUNITY HUB
SUPPORT GROUPS INDEX
MEDIA
IN THE PRESS
BLOG
RARITY MAG
VIDEO GALLERY
SHOP
CONTACT US
More
Use tab to navigate through the menu items.
Rare ACTIVists
PATIENT |
CAREGIVER |
DOCTOR |
SUPPORT GROUP |
RESEARCHER |
CORPORATE MEMBER
| PRESS
Log In
JOIN
GET INVOLVED
DONATE
Discussion Groups
Resources
Patient ID Cards
Shop
Support Groups
Webinars
Events
Forum
Blog
marykethmsn
PV Ambassador
+4
7
Followers
51
Following
Follow
Following icon
Message
More actions
Profile
My Orders
Files
Forum Comments
Forum Posts
Followers
My Subscriptions
Community Hub
Blog Posts
My Drafts
Blog Comments
Blog Likes
My Account
Notifications
Settings
bottom of page
