top of page
RR Webinar #5 Zoom Banner.png
4 DAYS TO THE EVENT
When
01 Aug 2026, 00:00 – 07 Aug 2026, 23:50
Where
Online Platforms

We are pleased to announce our first inaugural  research seminars for 2023. These webinars take place quarterly and share the work of national and international researchers and academics working on rare diseases and congenital disorders.

 

It is also a great networking opportunity to make new connections in your field! 

Speaker:

Dr Hyla Kluyts 

Head of Department of Anaesthesiology and Critical Care, Sefako Makgatho Health Sciences University 

Founder and Executive Director of Safe Surgery SA (SSSA) 

Consultant to the Clinical Services Unit of CareConnectHIE 

what you'll learn

This webinar is aimed at scientists, researchers, genetic

counsellors, medical geneticists and anyone insterested in

finding out more about long-term patient-reported outcomes 

using a digital health platform after surgery. 

requirements

  • Stable internet connection

  • Smart device

  • Zoom

speaker profile

Hyla Kluyts is an anaesthesiologist with a passion for understanding and addressing the barriers to accessing safe quality affordable perioperative care in the South African and African context.

 

Her research interest therefore aligns with the broader agenda of Global Surgery research and its implementation in education, clinical perioperative care, and surgical systems strengthening. She is the Head of Department of Anaesthesiology and Critical Care at Sefako Makgatho Health Sciences University and directs anaesthesia services in Dr George Mukhari Academic Hospital. Having spent 7 years in a private anaesthesia partnership practice, then returning to the academic sector, she has a fair grasp of the challenges faced in both the private and public healthcare sectors. International collaboration and engagement have broadened her view of the local situation in the context of global healthcare. She completed her doctoral degree in Anaesthesiology at the University of Pretoria on the topic of clinical risk prediction in surgical patients. She is the founder and executive director of a non-profit company and PBO, Safe Surgery SA (SSSA), that promotes the clinical use of perioperative healthcare data and offers research support to the African Perioperative Research Group (APORG). She is a member of the World Federation of Societies of Anaesthesiologists Safety & Quality of Practice committee and an honorary life member of the SA Society of Anaesthesiologists. She is a consultant to the Clinical Services Unit of CareConnectHIE, the first non-profit Health Information Exchange in South Africa. 

She lives near Hartbeespoort Dam, Gauteng, South Africa, with her husband and two daughters. 

RR Webinar #5 Website Speaker Bio .png
Dr Hyla Kluyts 

 

Head of Department of Anaesthesiology and Critical Care, Sefako Makgatho Health Sciences University 

 

Founder and Executive Director 

Safe Surgery SA (SSSA) 

 

Consultant

Clinical Services Unit of CareConnectHIE 

don't miss out,
register today!

other upcoming events

  • Sat, 01 Aug
    Online Platforms
    01 Aug 2026, 00:00 – 07 Aug 2026, 23:50
    Online Platforms
    Rheumatic Fever Week (RFW) is an annual campaign held from August 1st to 7th to raise awareness about Acute Rheumatic Fever (ARF). Left untreated, ARF can progress into Rheumatic Heart Disease (RHD), which can be fatal.
  • 01 Aug 2026, 00:00 – 31 Aug 2026, 23:50
    Online Platforms
    Bone marrow and stem cell donation awareness days are crucial for increasing the number of potential donors and ensuring that patients in need of transplants receive the life-saving treatment they require.
  • 01 Aug 2026, 00:00 – 31 Aug 2026, 23:50
    Online Platforms
    Spinal Muscular Atrophy Awareness Month is to raise awareness of the condition caused by the deficiency of a motor neuron protein called SMN and other rare forms of Spinal Muscular Atrophy (SMA) that stem from chromosome mutations.
  • Sat, 01 Aug
    Online Platforms
    01 Aug 2026, 00:00 – 31 Aug 2026, 23:50
    Online Platforms
    Gastroparesis Awareness Month, focuses attention on important health messages about gastroparesis diagnosis, treatment, and quality of life issues. The goals include improving understanding of gastroparesis to help patients and families.
  • Sat, 01 Aug
    01 Aug 2026, 00:00 – 31 Aug 2026, 23:50
    Online Platforms
    Autoinflammatory diseases are rare diseases that are often caused by genetic mutations that affect the innate immune system. Most of these diseases affect patients throughout their entire life, but a few may have onset in adulthood.
  • Tue, 11 Aug
    Online Platforms
    11 Aug 2026, 00:00 – 17 Aug 2026, 23:50
    Online Platforms
    Cloves Syndrome Awareness Day is dedicated to highlighting CLOVES syndrome, a rare genetic disorder caused by mutations in the PIK3CA gene.
  • Tue, 11 Aug
    Online Platforms
    11 Aug 2026, 00:00 – 10 Sept 2026, 23:50
    Online Platforms
    National Polio Eradication Week is a significant campaign in South Africa aimed at raising awareness about immunisation and the prevention of polio.
  • Wed, 19 Aug
    Online Platforms
    19 Aug 2026, 00:00 – 23:50
    Online Platforms
    Malan Syndrome Awareness Day is observed to educate the public about Malan syndrome, which is a rare genetic disorder involving overgrowth, intellectual disability, and behavioral issues.
  • Thu, 24 Sept
    24 Sept 2026, 12:00 – 16:00
    51 Donovan St, 51 Donovan St, Glen Austin AH, Midrand, 1685, South Africa
    Join us for a fun-filled Family Day where families, friends, and community members come together to connect, relax, and create lasting memories. Here you will enjoy games, outdoor activities, quality family time, and the opportunity to build meaningful connections.
  • Thu, 25 Jun
    Online Platforms
    25 Jun 2026, 00:00 – 23 Jul 2026, 23:50
    Online Platforms
    World Vitiligo Day, observed on June 25, aims to raise awareness about vitiligo, a skin condition affecting 1-2% of the global population, and to support those living with it.
  • Tue, 23 Jun
    Online Platforms
    23 Jun 2026, 00:00 – 23:50
    Online Platforms
    XLH Awareness Day is an annual event that raises awareness about X-linked hypophosphatemia (XLH), a rare genetic condition that affects bone, muscle, and teeth health. The day is dedicated to educating the public about the condition and celebrating those who are #XLHStrong.
  • Sun, 21 Jun
    Online Platforms
    21 Jun 2026, 00:00 – 23:50
    Online Platforms
    SYNGAP Day is celebrated to raise awareness about the SYNGAP1 gene mutation, which is associated with various neurological disorders
  • Sun, 21 Jun
    Online Platforms
    21 Jun 2026, 00:00 – 23:50
    Online Platforms
    Global ALS/MND Awareness Day every June 21 to raise awareness, inspire hope for better treatments and a cure, and work toward a future free of ALS/MND. The day is also an opportunity to honor caregivers.
  • 20 Jun 2026, 00:00 – 23:50
    Online Platforms
    World FSHD Day is held every year and aims to raise awareness for this debilitating form of muscular dystrophy.
  • Sat, 20 Jun
    Online Platforms
    20 Jun 2026, 00:00 – 23:50
    Online Platforms
    Nystagmus Awareness Day is observed annually to raise awareness about nystagmus, a condition characterized by involuntary eye movements that can significantly impact vision.
  • Fri, 19 Jun
    Online Platforms
    19 Jun 2026, 00:00 – 23:50
    Online Platforms
    World Sickle Cell Day is observed annually to raise awareness about sickle cell disease (SCD), a common blood disorder that affects millions worldwide. The day aims to educate the public about SCD, its impact on patients and their families, and the challenges faced in diagnosis and treatment
  • Wed, 17 Jun
    Online Platforms
    17 Jun 2026, 00:00 – 23:50
    Online Platforms
    World CDKL5 Awareness Day is celebrated to raise awareness about CDKL5 Deficiency Disorder (CDD). The community comes together to promote awareness, research, collaboration, and fundraising efforts.
  • Sun, 14 Jun
    Online Platforms
    14 Jun 2026, 00:00 – 23:50
    Online Platforms
    World Blood Donor Day (WBDD) is observed on 14 June every year as a worldwide celebration to honour and thank those people who donate their blood on a voluntary, unpaid basis to give the most precious gift of all – the Gift of Life.
RDSA-Logo-Colour-RGB-HR.png

Physical Address

Kingfisher House, 39A Kingfisher Road, Fourways 2191 Johannesburg,

South Africa

Follow us on

  • Facebook
  • Instagram
  • Twitter
  • YouTube
  • LinkedIn

NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

©2025  Rare Diseases South Africa NPC

Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

Kingfisher House, 39A Kingfisher Road, Fourways, 2191, South Africa 

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

bottom of page