top of page
RR Webinar #5 Zoom Banner.png
0 DAYS TO THE EVENT
When
01 Aug 2025, 00:00 – 31 Aug 2025, 23:50
Where
Online Platforms

We are pleased to announce our first inaugural  research seminars for 2023. These webinars take place quarterly and share the work of national and international researchers and academics working on rare diseases and congenital disorders.

 

It is also a great networking opportunity to make new connections in your field! 

Speaker:

Dr Hyla Kluyts 

Head of Department of Anaesthesiology and Critical Care, Sefako Makgatho Health Sciences University 

Founder and Executive Director of Safe Surgery SA (SSSA) 

Consultant to the Clinical Services Unit of CareConnectHIE 

what you'll learn

This webinar is aimed at scientists, researchers, genetic

counsellors, medical geneticists and anyone insterested in

finding out more about long-term patient-reported outcomes 

using a digital health platform after surgery. 

requirements

  • Stable internet connection

  • Smart device

  • Zoom

speaker profile

Hyla Kluyts is an anaesthesiologist with a passion for understanding and addressing the barriers to accessing safe quality affordable perioperative care in the South African and African context.

 

Her research interest therefore aligns with the broader agenda of Global Surgery research and its implementation in education, clinical perioperative care, and surgical systems strengthening. She is the Head of Department of Anaesthesiology and Critical Care at Sefako Makgatho Health Sciences University and directs anaesthesia services in Dr George Mukhari Academic Hospital. Having spent 7 years in a private anaesthesia partnership practice, then returning to the academic sector, she has a fair grasp of the challenges faced in both the private and public healthcare sectors. International collaboration and engagement have broadened her view of the local situation in the context of global healthcare. She completed her doctoral degree in Anaesthesiology at the University of Pretoria on the topic of clinical risk prediction in surgical patients. She is the founder and executive director of a non-profit company and PBO, Safe Surgery SA (SSSA), that promotes the clinical use of perioperative healthcare data and offers research support to the African Perioperative Research Group (APORG). She is a member of the World Federation of Societies of Anaesthesiologists Safety & Quality of Practice committee and an honorary life member of the SA Society of Anaesthesiologists. She is a consultant to the Clinical Services Unit of CareConnectHIE, the first non-profit Health Information Exchange in South Africa. 

She lives near Hartbeespoort Dam, Gauteng, South Africa, with her husband and two daughters. 

RR Webinar #5 Website Speaker Bio .png
Dr Hyla Kluyts 

 

Head of Department of Anaesthesiology and Critical Care, Sefako Makgatho Health Sciences University 

 

Founder and Executive Director 

Safe Surgery SA (SSSA) 

 

Consultant

Clinical Services Unit of CareConnectHIE 

don't miss out,
register today!

other upcoming events

  • Fri, 01 Aug
    01 Aug 2025, 00:00 – 31 Aug 2025, 23:50
    Online Platforms
    Autoinflammatory diseases are rare diseases that are often caused by genetic mutations that affect the innate immune system. Most of these diseases affect patients throughout their entire life, but a few may have onset in adulthood.
  • 01 Aug 2025, 00:00 – 31 Aug 2025, 23:50
    Online Platforms
    Spinal Muscular Atrophy Awareness Month is to raise awareness of the condition caused by the deficiency of a motor neuron protein called SMN and other rare forms of Spinal Muscular Atrophy (SMA) that stem from chromosome mutations.
  • Fri, 01 Aug
    Online Platforms
    01 Aug 2025, 00:00 – 31 Aug 2025, 23:50
    Online Platforms
    Gastroparesis Awareness Month, focuses attention on important health messages about gastroparesis diagnosis, treatment, and quality of life issues. The goals include improving understanding of gastroparesis to help patients and families.
  • Mon, 01 Sept
    01 Sept 2025, 00:00 – 23:50
    Online Platforms
    There are between 4 000 and 6 000 diagnosed genetic disorders, with an estimated one in 25 children affected by such a disorder. Some genetic disorders are apparent at birth while others are diagnosed at different stages throughout childhood.
  • Thu, 04 Sept
    Online Platforms
    04 Sept 2025, 00:00 – 23:50
    Online Platforms
    World Leukemia Day is a global campaign run in collaboration by patient groups from across the globe. It’s the one day of the year people from all around the world can come together to help raise awareness of leukemia. By raising awareness of leukemia and educating the world on
  • Mon, 08 Sept
    Online Platforms
    08 Sept 2025, 00:00 – 23:50
    Online Platforms
    World PT Day theme is healthy ageing, with a focus on preventing falls and frailty
  • Tue, 09 Sept
    Online Platforms
    09 Sept 2025, 00:00 – 23:50
    Online Platforms
    World First Aid Day raises awareness about the crucial role of First Aid in saving lives. The mission is to encourage everyone to commit to learning first aid and equip themselves with the skills needed to act swiftly and effectively in emergencies.
  • Wed, 10 Sept
    10 Sept 2025, 00:00 – 23:50
    Online Platforms
    This awareness day emphasises the critical importance of gynaecological health as foundational to a woman’s overall wellness. It centers on raising awareness that regular gynecological care—covering the uterus, ovaries, fallopian tubes, and vagina—is vital for hormonal balance, reproductive function
  • Fri, 12 Sept
    Online Platforms
    12 Sept 2025, 00:00 – 23:50
    Online Platforms
    World Alzheimer's Month takes place every September and World Alzheimer's Day is on 21 September each year. It's a global opportunity to raise dementia awareness and support people affected by the disease.
  • Sat, 13 Sept
    Online Platforms
    13 Sept 2025, 00:00 – 23:50
    Online Platforms
    The global focus is stronger than ever: reducing sepsis-related deaths, promoting prevention, and spotlighting milestones in the 2030 Global Agenda for Sepsis.
  • Mon, 15 Sept
    Online Platforms
    15 Sept 2025, 00:00 – 23:50
    Online Platforms
    World Lymphoma Awareness Day is observed annually on September 15 to raise awareness about lymphoma, a type of cancer affecting the lymphatic system.
  • Wed, 17 Sept
    Online Platforms
    17 Sept 2025, 00:00 – 23:50
    Online Platforms
    World Patient Safety Day (WPSD) is observed annually on 17 September, as established by the World Health Assembly resolution WHA72.6. It serves as a global call to action, uniting patients, families, health workers, policymakers, and civil society to advance patient safety worldwide.
  • Sat, 20 Sept
    Online Platforms
    20 Sept 2025, 00:00 – 23:50
    Online Platforms
    This day we aim to raise awareness about Usher syndrome, a genetic condition that causes combined deafness and blindness.
  • Thu, 25 Sept
    Online Platforms
    25 Sept 2025, 00:00 – 23:50
    Online Platforms
    The respiratory conditions have a significant societal and economic cost, with the burden negatively affecting healthcare systems, impacting the lives of patients and their families, lowering productivity, and widening the gap in life expectancy between the poorest and wealthiest. A significant prop
  • Fri, 26 Sept
    Online Platforms
    26 Sept 2025, 00:00 – 23:50
    Online Platforms
    World Contraception Day is observed on September 26th each year. This day aims to raise awareness about contraception and empower individuals to make informed choices regarding their sexual and reproductive health.
  • Sun, 28 Sept
    Online Platforms
    28 Sept 2025, 00:00 – 23:50
    Online Platforms
    This year on September 28, we are calling on you, me, and our communities to make a difference now! For the first time in its 19-year history, 2025’s theme does not include the word "rabies", showing how well-established this movement has become.
  • Mon, 29 Sept
    Online Platforms
    29 Sept 2025, 00:00 – 23:50
    Online Platforms
    Every year, over 17 million people die from heart disease. As a way to fight this, the World Heart Federation created World Heart Day. It’s an event held every year on September 29.
  • Wed, 01 Oct
    01 Oct 2025, 00:00 – 23:50
    Online Platforms
    This year’s commemoration focuses on recognizing and supporting the transformative role that older persons play in driving action at both local and global levels. Drawing on their expertise in areas such as health equity, financial well-being, community resilience, and human rights advocacy.
RDSA-Logo-Colour-RGB-HR.png

Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

Follow us on

  • Facebook
  • Instagram
  • Twitter
  • YouTube
  • LinkedIn

NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

bottom of page