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MPS Awareness Day

Thu, 15 May

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Today, we are joining in aid to help raise awareness on Mucopolysaccharidosis (MPS) — a group of rare genetic disorders that often go undiagnosed, misdiagnosed, and misunderstood. At RDSA, we believe every rare voice matters. We stand in solidarity with the MPS community.

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MPS Awareness Day
MPS Awareness Day

Time & Location

15 May 2025, 13:00 – 23:50

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About the Event

May 15 is MPS Awareness Day 💜


Today, we are joining in aid to help raise awareness on Mucopolysaccharidosis (MPS) — a group of rare genetic disorders that often go undiagnosed, misdiagnosed, and misunderstood.


Behind every MPS diagnosis is a warrior — a child, a parent, a family — navigating a medical maze with strength, courage, and resilience.


At RDSA, we believe every rare voice matters. We stand in solidarity with the MPS community, advocating for earlier diagnosis, better care, and more research.


Early intervention isn’t a luxury—it’s a lifeline. Wear purple. Start conversations.💜

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

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Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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