We have noticed that many queries are still sent directly to our CEO, Kelly,  for help and support. While we understand this comes from a place of trust, we want to make sure you receive the quickest and most effective support possible – and for that, our dedicated team is here to help you.

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To ensure your needs are met efficiently, we kindly ask that you contact the relevant team member directly, as they are best positioned to assist you promptly:

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Patient Services: For help with resources, emotional support, or connecting to services.
Nomsa Mtshali – patients@rarediseases.co.za

 

Patient Navigation: For assistance with medical aid claims, doctors referrals, research studies and medical services

Ankia Greyling - traffic@rarediseases.co.za
 

Membership & Community Engagement: For membership enquiries, community events and awareness activities
Hlumela Tshijila - admin@rarediseases.co.za
 

Events and Volunteers: For Rare Activist sign-ups, volunteering, and events.

Judy McBean - events@rarediseases.co.za

Fundraising and Partnerships: For fundraising queries or participation in fundraising initiatives.
Fiona Sander - fundraising@rarediseases.co.za 

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Of course, our CEO, Kelly du Plessis remains involved in all the work we do – but to make sure we support you as quickly as possible, our team is your first point of contact.

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Should you still wish to speak to Kelly directly, please contact Sumaya at support@rarediseases.co.za who will assist in setting up a meeting time accordingly. 

 

Thank you for helping us make this support process even stronger, quicker and more efficient.