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get in touch

If you’d like to find out more about us and how we can help you, please get in touch. Drop us an email or use the contact form below.

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Contact Details

Tel +27 10 594 3844
Hotline 072 476 7552

Email hello@rarediseases.co.za

Office Hours
Monday to Thursday

09h00 – 16h00
Friday

09h00 – 13h30

Physical Address

The Station Bryanston

63 Peter Place

Bryanston, Sandton

2021

contact form

Thanks for submitting!

We have noticed that many queries are still sent directly to our CEO, Kelly,  for help and support. While we understand this comes from a place of trust, we want to make sure you receive the quickest and most effective support possible – and for that, our dedicated team is here to help you.

To ensure your needs are met efficiently, we kindly ask that you contact the relevant team member directly, as they are best positioned to assist you promptly:

Patient Services: For help with resources, emotional support, or connecting to services.
Nomsa Mtshali patients@rarediseases.co.za

 

Patient Navigation: For assistance with medical aid claims, doctors referrals, research studies and medical services

Ankia Greyling - traffic@rarediseases.co.za
 

Membership & Community Engagement: For membership enquiries, community events and awareness activities
Hlumela Tshijila - admin@rarediseases.co.za

 

Events and Volunteers: For Rare Activist sign-ups, volunteering, and events.

Judy McBean - events@rarediseases.co.za

Fundraising and Partnerships: For fundraising queries or participation in fundraising initiatives.
Fiona Sander - fundraising@rarediseases.co.za 

Of course, our CEO, Kelly du Plessis remains involved in all the work we do – but to make sure we support you as quickly as possible, our team is your first point of contact.

Should you still wish to speak to Kelly directly, please contact Sumaya at support@rarediseases.co.za who will assist in setting up a meeting time accordingly. 

 

Thank you for helping us make this support process even stronger, quicker and more efficient. 

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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