top of page

Rare Disease Day 2023
Rare Disease Day 2023
00:31
Letsatsi la Mafu asatlwaelehang la 2023
00:40
Usuku lwezifo ezingavamile 2023
00:41

Patient Stories
#RareAware 2022 - Angelina & Janet Grab
01:39
#RareAware 2022 - Victor Family
03:56
#RareAware 2022 - Nico Nel
01:45
RDSA Share Your Rare - Janice Strydom Interview
01:43

Rare Aware
#RareAware 2022 - Kelly Du Plessis Social Call To Action Video
00:49
#lightupforrare video
30:37
#RareAware 2022 - Nico Nel
01:45
#RareAware 2022 - Roxy Burger
00:53

Webinars
Understanding Clinical Trials

Understanding Clinical Trials

01:12:43
Understanding Section 21 and off-label products

Understanding Section 21 and off-label products

01:06:40
Getting to know ITP & MF

Getting to know ITP & MF

01:04:20
Getting Social - Taking your support group to new digital heights

Getting Social - Taking your support group to new digital heights

01:00:17

Policy Development
Rare Diseases Access Initiative Symposium 2021

Rare Diseases Access Initiative Symposium 2021

02:45:08

Support Groups Member Content
Getting Social - Taking your support group to new digital heights

Getting Social - Taking your support group to new digital heights

01:00:17
Support Groups: Collating Feedback & Turning It Into Action

Support Groups: Collating Feedback & Turning It Into Action

43:01
Going Virtual with Patient and Caregiver Support Meetings

Going Virtual with Patient and Caregiver Support Meetings

59:47
Hosting a Successful Webinar

Hosting a Successful Webinar

$
59:46
Video "Hosting a Successful Webinar" is not playable

Researchers and Academics
Genomic Research to Elucidate the Genetics of Rare diseases with Professor Eric Vilain

Genomic Research to Elucidate the Genetics of Rare diseases with Professor Eric Vilain

$
01:01:44
Video "Genomic Research to Elucidate the Genetics of Rare diseases with Professor Eric Vilain" is not playable
RDSA-Logo-Colour-RGB-HR.png

Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

Follow us on

  • Facebook
  • Instagram
  • Twitter
  • YouTube
  • LinkedIn

NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

bottom of page