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patient voices



The Patient Voices programme has been developed with the aim of ensuring that our work is continuously shaped by the patients we represent.

This project allows the patient community to assist Rare Diseases South Africa in:

  • developing new resources

  • influencing policy development

  • providing insight to patient medication and device development

  • providing extended peer-to-peer support to ensure that patients do not feel isolated 

  • helping us raise awareness of rare and genetic diseases across South Africa

meet our amazing patient
voices ambassadors

"Nothing can stand in the way of the power of millions of voices calling for change.”

~ Barack Obama

we need you to be
a voice for change
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