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Rare Assist was developed with the aim of assisting rare disease patients with obtaining access to treatment and services.

 

The project ensures that patients receive appropriate support from presentation of symptoms through to end of life care.

The services include claims submissions, benefit applications and authorisations as well as specialised applications (such as PMB,

ex-gratia, etc) in the private medical aid sector.

 

The outcome of such services will result in a decrease of the administrative burden facing those with rare diseases, as well as assisting those who do not understand the medical aid benefits to which they have access.

Without appropriate case management services:

  • Patients and Caregivers have an increased administrative burden which causes further stress and anxiety

  • Patient compliance is reduced due to patients not having necessary authorizations and approvals

  • Out of Pocket expenses continue to rise, further burdening the patient

  • Patients do not access their medical aid benefits appropriately  

case management
sign up form

Patient details

Multi-line address
Birthday
Year
Month
Day

Patient's Next of Kin


Diagnosis & clinical information

Does the patient have medical aid / medical insurance?
Yes
No

Medical aid / funder details

Have you already submitted a request or claim to the medical aid about this issue?
Yes
No

What support do you need from Rare Assist?


Multi choice

Include key dates, decisions by the medical aid, and anything you feel is important for us to understand.

Please upload any relevant documents, such as:

• Medical aid correspondence (approvals/declines, benefit statements)

• Clinical motivation letters / doctors’ reports

• Investigation results (labs, scans, genetic results)

• Prescriptions / treatment plans

• Any other documents that help us understand your case

How urgent is this request?
Critical (treatment interruption or time-sensitive deadline)
High (needs attention within 3-5 working days)
Medium (important but not urgent)
Low (general advice / information)

Communication & consent

Preferred method of contact
Best time to contact you
Weekday mornings
Weekday afternoons
Evenings
Available anytime
Optional Programme Support
R 50
R 100
R 250

RDSA provides Rare Assist case management support at no cost to patients.

If you are in a position to do so, an optional donation helps us continue offering this service to others. This is entirely voluntary and will not affect the support you receive.

" Thanks to Rare Disease SA for helping that the medical aid approved

Juan’s treatment so quickly and asking us how it is going with him...

Juan is a little fighter and warrior. "

~ Juanita Van Rooyen

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

©2025  Rare Diseases South Africa NPC

Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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