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Rare Assist was developed with the aim of assisting rare disease patients with obtaining access to treatment and services.


The project ensures that patients receive appropriate support from presentation of symptoms through to end of life care.

The services include claims submissions, benefit applications and authorisations as well as specialised applications (such as PMB,

ex-gratia, etc) in the private medical aid sector.


The outcome of such services will result in a decrease of the administrative burden facing those with rare diseases, as well as assisting those who do not understand the medical aid benefits to which they have access.

Without appropriate case management services:

  • Patients and Caregivers have an increased administrative burden which causes further stress and anxiety

  • Patient compliance is reduced due to patients not having necessary authorizations and approvals

  • Out of Pocket expenses continue to rise, further burdening the patient

  • Patients do not access their medical aid benefits appropriately  

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" Thanks to Rare Disease SA for helping that the medical aid approved

Juan’s treatment so quickly and asking us how it is going with him...

Juan is a little fighter and warrior. "

~ Juanita Van Rooyen

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