We believe in collaboration – together we can achieve great results so whether you are an individual, patient representative, healthcare professional or a company, every effort can make a difference. From lending your voice to the voiceless, telling your story to educate or using your passion and athletic ability to raise awareness and funds, there are numerous ways you can get involved and help people living with a rare disease.
PATIENT VOICES – PATIENT AMBASSADORS
The Patient Voices programme has been developed with the aim to ensure that our work is continuously shaped by the patients we represent. This project allows the patient community to assist RDSA in developing new resources, influencing policy development, providing insight to patient medication and device development, providing extended peer-to-peer support to ensure that patients do not feel alone or isolated and helping us raise awareness of rare and genetic diseases across South Africa
Fancy a challenge for a good cause? Then why not participate in one of our selected events and step up for the rare cause you are passionate about. Whether you run, ride or swim you can create awareness and a platform for fundraising to assist families affected by rare diseases. Have a browse through some of our flagship events, let us know if you have others in mind, or get creative and let us know what you come up with. Every little bit helps – so what are you waiting for?
We are always looking for charity champions – someone who can commit time and effort to not only fundraising but raising awareness within their community. Below are some of our charity champions who do amazing things for Rare Diseases South Africa, of their own accord. You could be one of them…
We are honoured to have people who give their time selflessly to Rare Diseases South Africa. You provide valuable resources and manpower that enable us to carry out our work and events.