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the benefits of joining

  • Receiving up to date information on the rare disease and congenital disorder landscape in South Africa, and globally.

  • Support and assistance to see you throughout your caregiver journey

  • Peer-to-peer support (connect with others caring for loved ones with the same / similar conditions)

  • Ability to join our closed Facebook group, ask questions and connect

  • Access to educational support

  • Access to counselling and emotional support

  • Improved awareness

  • Helps us improve the data on prevalence and incidence of various rare diseases and congenital disorders

  • We get to raise awareness and share community stories to educate the public on RDs and CDs

  • We get a better understanding of what our community needs

how you joining helps us at RDSA
costs for
volunteer membership

No membership fees, donations are welcome.
Should you wish to contribute, please email with your invoicing details for us to arrange accordingly. All donations are tax-deductible in accordance with Section 18A of the Income Tax Act.

register today as a volunteer with RDSA and join our rare community
volunteer registration form
Would you like to volunteer at our events?
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