Having been in the Rare Disease community for a decade now, we know that it sometimes just gets a little too much, and anxiety kicks into another gear.
Rare Diseases SA now have various counselling services available for our members due to strategic partnerships with dedicated service providers.
As we know mobility, and getting around is often challenging for many of our families, counselling can be offered either telephonically, via a secure online platform (Zoom), or in person (dependent on geographic location).
Genetic counsellors are healthcare professionals who have specialised education at the Masters degree level in both genetics and counselling.
Genetic counsellors provide risk assessment, education and support to individuals and families affected by, or are at risk of, genetic disorders. Genetic counsellors interpret genetic testing, provide short-term psychosocial counselling, facilitate necessary referrals and serve as patient advocates.
Various counselling is available:
Grief / Bereavement
Work related challenges
Abuse & Trauma
Coping skills and stress management
Depression and Anxiety