rare
research
RDSA research focuses on key, patient centric issues relevant to the local and global rare disease and congenital disorder communities. Targeted projects provide an evidenced-based foundation for our advocacy work, connect researchers and patients, and highlight the lay expertise of those living with rare diseases and congenital disorders.
the benefits of joining
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Receiving up to date information on the rare disease and congenital disorder landscape in South Africa, and globally.
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Support and assistance with medical aid requests.
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Peer-to-peer support (connect with others HCPs treating conditions that you are working on)
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Access to educational support (CPD events)
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Access to latests research and clinical trial news
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Helps us improve the data on prevalence and incidence of various rare diseases and congenital disorders,
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We are able to develop a referral network across HCPs with specific interests
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We get a better understanding of what our community needs.
how you joining helps us at RDSA
costs for
academic researcher
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Registered Healthcare Professionals:
R525 per annum
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Students registered at a relevant academic institution: R157.50 per annum
