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Aug 295 min

The Cost of a Life: A Family's Fight for Their Son's Future Amid Medical Scheme Dispute—Raising Awareness for SMA

Johannesburg, South Africa – August 2024 – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...

Aug 273 min

Great.com interviews Rare Diseases South Africa About Shinning Light on All Things Rare

Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...

Aug 274 min

Update on the #FightForZach

It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...

Aug 1811 min

Rare-X in Review: Understanding the legal framework for the Rare Disease community in South Africa

RareX is a premier conference dedicated to the rare diseases community, bringing together a diverse group of healthcare professionals,...

Aug 83 min

Request to Minister of Health regarding WHA Resolution on Rare Diseases

Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution

Jun 202 min

CMScript: Focus on Bipolar Disorder

Bipolar disorder affects approximately 45 million people worldwide and is the sixth leading cause of disability in the world. In South...

May 223 min

Get The Flu Vaccine Ahead Of The Influenza Season

As the seasons change, so does the risk of getting sick. With the influenza season on the horizon, it is time to think about protecting...

Mar 182 min

CMScript: Focus on Endometriosis

March is Endometriosis Awareness Month, a period dedicated to raising awareness about this complex medical condition that affects...