The Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum...

A story of hope and healing. “I'm Andi*, an ambassador for a very rare condition called Trimethylaminuria (TMAU or Fish Odour Syndrome)....

Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...

As a dad, it was my absolute honour and privilege to be able to give my daughter one of my kidneys on June 22, 2021. This was exactly...

Rare Warrior, Juan Venter was born on the 21st of April 2022 at 35 weeks. Juan was immediately placed in Neonatal ICU for 4 weeks while...

After multiple doctors’ visits, an ultrasound finally confirmed what we already knew- something was wrong with our baby girl. Then came...

It is one of those days you never forget… Sunday 14th June 2005. I had flown back from JHB for work, and it was a chilly day. My husband...

Authentic Parenting From Raising Aidan Microwave Cupcake Mix to The Hemp Cream, here’s an incredible story of a mother’s determination to...

The new normal with Bailey and the fun we have as a family is no different to other families Our little Bailey came into the world on 7...

Shining the light on the 1 in 15 people affected by rare diseases, including her own two rare warriors, Mrs. Isaacs tells her own...

At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....

My son Gidion was diagnosed with #FanconiAnemia (#FA) at birth, a very rare genetic disorder causing fatal bone marrow failure. He came...

On the 21st of January 2011, our beautiful little boy Connor was born. He was perfect in every way and had no issues what so ever. Connor...

I thought long and hard before I posted this, since I don’t want to offend anyone. I know in my heart everything said to me is said with...

Little Shanaya Govender, or Shanaya the First as she affectionately called herself due to her love for Sophia the First and all things...

Mc van der Merwe was born on 9 December 2014, after we had prayed for him for many years.  He was such a beautiful baby boy, he did...

There are aspects to working or running a charity that people do not realize. I would like to explain some of the things that we deal...

Mnqobi – “The one who conquers” We were blessed with two boys, born on the 1st September 2018. Our son Mnqobi, baby Q for short, was born...

About 7 years ago, I noticed a peculiar reaction when I had something to eat or drink. Human nature has it, we try and self-diagnose...

Danté’s life journey started on 31 March 2015 and the doctors immediately noticed that something was not intact so he was admitted to...