Rare Diseases SAJun 25, 20212 minUnderstanding Vitiligo25 June is World Vitiligo Day. This rare, progressive, auto-immune condition can affect anyone, at any age and whilst research is continuing
Rare Diseases SAMar 31, 20213 minBurden of Rare Diseases in the USA almost $1 Trillion in 2019The total economic burden for Rare Diseases in the United States of America for 2019 came to almost $1 Trillion! That is according to the...
Rare Diseases SAMar 9, 20213 minInvisible Value SyndromeIt sounds a lot like a rare disease… but it’s neither a disease, nor is it rare. It’s an unfortunate mentality that exists surrounding...