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Mandela Day 2025: Imagination Stations Bring Hope to Witkoppen Clinic
SA) set out to honour Madiba’s enduring belief in the power of education by launching a heartfelt initiative: Imagination Stations
Sep 23, 20252 min read
Rare Diseases South Africa Brings “Safe Beginnings” to Charlotte Maxeke for World Patient Safety Day
Johannesburg, South Africa – 17 September 2025 – The bustle of Charlotte Maxeke Johannesburg Academic Hospital looks a little different...
Sep 17, 20252 min read
Running for Awareness, a Sister’s Fight Against a Rare and Painful Disease
Living with Epidermolysis Bullosa (EB) is a daily battle. Often referred to as “butterfly skin” disease , EB is a rare genetic disorder...
Apr 4, 20253 min read
In Memory of Dr Mehnaaz Ally
07 Feb 2025 - Johannesburg It is with profound sadness and deep respect that we gather our thoughts to honor the remarkable life and...
Feb 7, 20252 min read
Dr. Helen Malherbe Steps Down as Director of Rare Diseases South Africa NPC
7 February 2025 - Johannesburg Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a...
Feb 7, 20252 min read
Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
Sep 22, 20233 min read
#FIGHTFORZACH
August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...
Aug 18, 20231 min read
IRDiRC Forms Regulatory Science Committee to Address Regulatory Challenges in Rare Disease Research
IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...
Sep 22, 20221 min read
World Down Syndrome Day - 21st March #InclusionsMeans...
Including all individuals with intellectual disabilities! March 21st is World Down Syndrome Day (WDSD), this global awareness day has...
Mar 2, 20222 min read
World Birth Defects Day
The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...
Mar 1, 20224 min read
Shining the Light on Rare Diseases in South Africa
This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...
Feb 16, 20224 min read
International Childhood Cancer Day (ICCD) – 15 February 2022
The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...
Feb 15, 20223 min read
September Childhood Cancer Awareness Month
Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...
Sep 1, 20212 min read
FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES
Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...
Aug 23, 20212 min read
Rare Diseases SA champion private healthcare engagement to align with Universal Health Care
28th February 2019; Government’s National Health Insurance (NHI) scheme represents a substantial policy shift to restructure healthcare...
Mar 7, 20194 min read
South Africa makes an impression at United Nations
To mark the occasion of Rare Disease Day 2019 the NGO Committee for Rare Diseases organised its second high-level event at the United...
Mar 7, 20193 min read
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