Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
top of page
blog
Search
Rare Diseases SA
- Aug 18
- 1 min
#FIGHTFORZACH
August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...
9 views0 comments
Rare Diseases SA
- Aug 18
- 1 min
Introducing The South African Rare Diseases Access Initiative
This month our director of research and epidemiology, Dr Helen Malherbe, published yet another correspondence article in the South...
19 views0 comments
Hlumela Tshijila
- Sep 22, 2022
- 1 min
IRDiRC Forms Regulatory Science Committee to Address Regulatory Challenges in Rare Disease Research
IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...
55 views0 comments
Rare Diseases SA
- Aug 26, 2022
- 1 min
High Court Judgement in the Matter De Wet and RDSA vs MediHelp and CMS
The matter of Zachary de Wet was heard on Tuesday, 23 August, in an urgent application in the Pretoria High Court. The application made...
222 views0 comments
Rare Diseases SA
- Sep 7, 2021
- 5 min
RECOGNISING RARE DISEASES – ACCESS AND ACTION
Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...
516 views0 comments
bottom of page