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Just Keep Spinning: What the Cape Epic Taught Me About Pain, Purpose, and Possibility
Bruce Campbell: The Rare Warrior Who Refuses to Stop At Rare Diseases South Africa , we celebrate resilience, courage, and community, values personified by Bruce Campbell , a true Rare Warrior whose journey inspires both the rare disease community and the sporting world. A Life of Resilience Bruce’s battle with rare disease began at six years old when he was diagnosed with Guillain-Barré Syndrome , leaving him paralysed and on a ventilator. Against the odds, he learned to wal

Hlumela Tshijila
Mar 232 min read


Running for Awareness, a Sister’s Fight Against a Rare and Painful Disease
Living with Epidermolysis Bullosa (EB) is a daily battle. Often referred to as “butterfly skin” disease , EB is a rare genetic disorder...

Rare Diseases SA
Apr 4, 20253 min read
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