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Hlumela Tshijila
- Feb 23
- 1 min
HELP RAISE AWARENESS FOR VASCULAR MALFORMATIONS!
Remei was born a year ago with what initially looked like what the paediatrician described as “severe port wine stains”. As the...
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Hlumela Tshijila
- Jan 24
- 2 min
Circular 1 of 2024: Iron Deficiency Anaemia as a PMB condition
The Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum...
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Hlumela Tshijila
- Nov 8, 2023
- 1 min
November Is Lung Cancer Awareness Month
Did you know that lung cancer is one of the most common types of cancer worldwide? It is also the leading cause of cancer-related deaths...
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Rare Diseases SA
- Oct 13, 2023
- 2 min
Celebrating Liesel…
Today is Phelan-McDermid day and we are celebrating Liesel . 5 year old Liesel was born in Pretoria, with Phelan-McDermid Syndrome, and...
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Hlumela Tshijila
- Oct 5, 2023
- 6 min
Switching and Monitoring Best Practice for Gaucher Disease
A consensus document Prepared by: International Working Group on Gaucher Disease (IWGGD) and International Gaucher Alliance (IGA) Issued...
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Rare Diseases SA
- Oct 4, 2023
- 2 min
Living with Gaucher disease as a toddler in South Africa
Two-year-old Eden Green was admitted to Red Cross Children’s Hospital in July 2020, where she was found to have an enlarged liver and...
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Rare Diseases SA
- Sep 22, 2023
- 3 min
Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
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Rare Diseases SA
- Sep 19, 2023
- 4 min
Orchard Therapeutics Announces Acceptance of Biologics License Application for OTL-200 in MLD.
Hope is on the horizon for patients impacted by metachromatic leukodystrophy.
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Rare Diseases SA
- Sep 6, 2023
- 3 min
Intellectual Property in Healthcare: the Patient Perspective
Intellectual Property in healthcare -what does it mean for patients?
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