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Hlumela Tshijila
Mar 43 min read
Rare Disease Awareness 28 February 2025
Written by Michelle Norman, Umduduzi High Level Administrator and mother of 3. Brayden, grade 9, Jesse (2014 to 2017) and Gia (2020 to...
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Rare Diseases SA
Feb 274 min read
Rare Disease Day on 28 February spotlights the lives of over 4.2 million South Africans with rare and difficult to treat diseases
JOHANNESBURG, 27 February 2025  – The lives of millions of South Africans with a litany of rare diseases can be vastly improved, and even...
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Rare Diseases SA
Feb 142 min read
Great news from the Jada Foundation
Johannesburg, 14th February 2025 - Rare Diseases South Africa is thrilled to share the news coming out the Jada Foundation this week. ...
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Rare Diseases SA
Feb 122 min read
Rare Diseases South Africa Welcomes WHO Executive Board’s Historic Recommendation on Rare Diseases
Johannesburg, South Africa – 12 February 2025 Rare Diseases South Africa (RDSA) proudly welcomes the historic decision by the World...
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Rare Diseases SA
Feb 72 min read
In Memory of Dr Mehnaaz Ally
07 Feb 2025 - Johannesburg It is with profound sadness and deep respect that we gather our thoughts to honor the remarkable life and...
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Rare Diseases SA
Feb 72 min read
Dr. Helen Malherbe Steps Down as Director of Rare Diseases South Africa NPC
7 February 2025 - Johannesburg Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a...
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Hlumela Tshijila
Nov 13, 20245 min read
Breaking Down Barriers: Creating a More Inclusive World for All
This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...
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Rare Diseases SA
Aug 29, 20245 min read
The Cost of a Life: A Family's Fight for Their Son's Future Amid Medical Scheme Dispute—Raising Awareness for SMA
Johannesburg, South Africa – August 2024  – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...
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Hlumela Tshijila
Aug 27, 20243 min read
Great.com interviews Rare Diseases South Africa About Shinning Light on All Things Rare
Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...
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Rare Diseases SA
Aug 27, 20244 min read
Update on the #FightForZach
It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...
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