top of page
RA-SM-Covers.jpg

Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.

Whether you participate in one of our featured events or a marathon, triathlon, or bike ride of your own, by fundraising for Rare Diseases South Africa NPC you’re helping us empower patients through improved advocacy, navigation and community engagement.

Plus when you participate in one of Rare ACTIVists featured events, should you surpass your fundraising goal, you’ll receive:

  • complimentary race registration

  • Rare ACTIVists race gear and

  • team support

Sign up below to become a #RareACTIVist and use your mobility to the benefit of those without it. #Run4Rare #Swim4Sadie or #Ride4Rare with our Rare ACTIVist team!

BE A HERO FOR RARE DISEASES.

BECOME A RARE ACTIVIST TODAY!
rare activist sign up form
Gender
How did you hear about Rare Diseases South Africa?
What disciplines would you like to partake in?
Cycle Jersey / Running Shirt
Upload File
Do you provide us with consent to share your picture and reason for becoming a #RareACTIVist on social media as part of our marketing efforts?
Rare ACTIVists Team Entry

STAY IN THE KNOW ON ALL OUR ACTIV ITIES BY FOLLOWING US ON THE SOCIALS 

  • Instagram
  • Facebook
  • Twitter

UPCOMING EVENTS

  • RareX 2024
    RareX 2024
    Wed, 14 Feb
    Indaba Hotel
    14 Feb 2024, 08:00 – 17 Feb 2024, 17:00
    Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa
    14 Feb 2024, 08:00 – 17 Feb 2024, 17:00
    Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa
    The Third Biennial Rare Diseases Conference will take place in Johannesburg from 14-17 Feb 2024. The purpose of the conference is to provide a forum for rare disease patients, doctors and stakeholders to connect & collaborate, and to facilitate an ongoing dialogue on rare diseases & their treatment.
  • Rare Disease Day 2024 — Denim Walk
    Rare Disease Day 2024 — Denim Walk
    Sat, 24 Feb
    Walter Sisulu National Botanical Garden
    24 Feb 2024, 18:00 – 20:00
    Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa
    24 Feb 2024, 18:00 – 20:00
    Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa
    Denim Walk – a fun-for-all, evening walk through the beautiful Walter Sisulu National Botanical Gardens. Come and #ShareYourColour with our RARE community, your friends and your family. And please, be sure to wear jeans and an old white shirt as we have some colourful play planned.
bottom of page