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Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.

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Whether you participate in one of our featured events or a marathon, triathlon, or bike ride of your own, by fundraising for Rare Diseases South Africa NPC you’re helping us empower patients through improved advocacy, navigation and community engagement.

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Plus when you participate in one of Rare ACTIVists featured events, should you surpass your fundraising goal, you’ll receive:

  • complimentary race registration

  • Rare ACTIVists race gear and

  • team support

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Sign up below to become a #RareACTIVist and use your mobility to the benefit of those without it. #Run4Rare #Swim4Sadie or #Ride4Rare with our Rare ACTIVist team!

BE A HERO FOR RARE DISEASES.

BECOME A RARE ACTIVIST TODAY!
rare activist sign up form
Gender
How did you hear about Rare Diseases South Africa?
What disciplines would you like to partake in?
Cycle Jersey / Running Shirt
Upload File
Do you provide us with consent to share your picture and reason for becoming a #RareACTIVist on social media as part of our marketing efforts?
Rare ACTIVists Team Entry

STAY IN THE KNOW ON ALL OUR ACTIV ITIES BY FOLLOWING US ON THE SOCIALS 

  • Instagram
  • Facebook
  • Twitter

UPCOMING EVENTS

  • Primary Mitochondrial Disease – A Global Energy Crisis
    Primary Mitochondrial Disease – A Global Energy Crisis
    Primary Mitochondrial Disease – A Global Energy Crisis
    Tue, 04 Jun
    Zoom
    04 Jun 2024, 11:00 – 12:00
    Zoom
    04 Jun 2024, 11:00 – 12:00
    Zoom
    Join us this June for an intriguing webinar featuring Professor Rahman and Miss Meldau as they delve into the depths of primary mitochondrial disease. Gain unique insights from their expertise as they unravel the complexities of this condition.
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