Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.
Whether you participate in one of our featured events or a marathon, triathlon, or bike ride of your own, by fundraising for Rare Diseases South Africa NPC you’re helping us empower patients through improved advocacy, navigation and community engagement.
Plus when you participate in one of Rare ACTIVists featured events, should you surpass your fundraising goal, you’ll receive:
complimentary race registration
Rare ACTIVists race gear and
Sign up below to become a #RareACTIVist and use your mobility to the benefit of those without it. #Run4Rare #Swim4Sadie or #Ride4Rare with our Rare ACTIVist team!
BE A HERO FOR RARE DISEASES.
BECOME A RARE ACTIVIST TODAY!
- Wed, 14 FebIndaba Hotel14 Feb 2024, 08:00 – 17 Feb 2024, 17:00Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa14 Feb 2024, 08:00 – 17 Feb 2024, 17:00Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South AfricaThe Third Biennial Rare Diseases Conference will take place in Johannesburg from 14-17 Feb 2024. The purpose of the conference is to provide a forum for rare disease patients, doctors and stakeholders to connect & collaborate, and to facilitate an ongoing dialogue on rare diseases & their treatment.
- Sat, 24 FebWalter Sisulu National Botanical Garden24 Feb 2024, 18:00 – 20:00Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa24 Feb 2024, 18:00 – 20:00Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South AfricaDenim Walk – a fun-for-all, evening walk through the beautiful Walter Sisulu National Botanical Gardens. Come and #ShareYourColour with our RARE community, your friends and your family. And please, be sure to wear jeans and an old white shirt as we have some colourful play planned.