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Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.

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Whether you participate in one of our featured events or a marathon, triathlon, or bike ride of your own, by fundraising for Rare Diseases South Africa NPC you’re helping us empower patients through improved advocacy, navigation and community engagement.

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Plus when you participate in one of Rare ACTIVists featured events, should you surpass your fundraising goal, you’ll receive:

  • complimentary race registration

  • Rare ACTIVists race gear and

  • team support

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Sign up below to become a #RareACTIVist and use your mobility to the benefit of those without it. #Run4Rare #Swim4Sadie or #Ride4Rare with our Rare ACTIVist team!

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Want to get involved as a corporate sponsor? Email us on support@rarediseases.co.za

BE A HERO FOR RARE DISEASES.

BECOME A RARE ACTIVIST TODAY!
rare activist sign up form
Gender
How did you hear about Rare Diseases South Africa?
What disciplines would you like to partake in?
Upload File
What disease area are you wanting to raise funds for?
What upcoming events are you going to be doing?
Do you provide us with consent to share your picture and reason for becoming a #RareACTIVist on social media as part of our marketing efforts?
Rare ACTIVists Team Entry

STAY IN THE KNOW ON ALL OUR ACTIV ITIES BY FOLLOWING US ON THE SOCIALS 

  • Instagram
  • Facebook
  • Twitter

UPCOMING EVENTS

  • #Run4Rare TTOM 2025
    #Run4Rare TTOM 2025
    Sat, 05 Apr
    Cape Town
    05 Apr 2025, 05:00 – 17:00
    Cape Town, Cape Town, South Africa
    05 Apr 2025, 05:00 – 17:00
    Cape Town, Cape Town, South Africa
    Total Sports Two Oceans Marathon 2025 is an opportunity to use your mobility to benefit others - our rare diseases community! Purchase your entries today to take part in the worlds most beautiful marathon!
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