Our RARE ACTIVist programme needs YOU to help us raise awareness and funds for our cause, our patients, and ultimately the rare disease community.
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Whether you participate in one of our featured events or a marathon, triathlon, or bike ride of your own, by fundraising for Rare Diseases South Africa NPC you’re helping us empower patients through improved advocacy, navigation and community engagement.
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Plus when you participate in one of Rare ACTIVists featured events, should you surpass your fundraising goal, you’ll receive:
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complimentary race registration
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Rare ACTIVists race gear and
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team support
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Sign up below to become a #RareACTIVist and use your mobility to the benefit of those without it. #Run4Rare #Swim4Sadie or #Ride4Rare with our Rare ACTIVist team!
BE A HERO FOR RARE DISEASES.
BECOME A RARE ACTIVIST TODAY!
STAY IN THE KNOW ON ALL OUR ACTIV ITIES BY FOLLOWING US ON THE SOCIALS
UPCOMING EVENTS
Wed, 14 FebIndaba Hotel14 Feb 2024, 08:00 – 17 Feb 2024, 17:00Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa14 Feb 2024, 08:00 – 17 Feb 2024, 17:00Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South AfricaThe Third Biennial Rare Diseases Conference will take place in Johannesburg from 14-17 Feb 2024. The purpose of the conference is to provide a forum for rare disease patients, doctors and stakeholders to connect & collaborate, and to facilitate an ongoing dialogue on rare diseases & their treatment.
Sat, 24 FebWalter Sisulu National Botanical Garden24 Feb 2024, 18:00 – 20:00Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa24 Feb 2024, 18:00 – 20:00Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South AfricaDenim Walk – a fun-for-all, evening walk through the beautiful Walter Sisulu National Botanical Gardens. Come and #ShareYourColour with our RARE community, your friends and your family. And please, be sure to wear jeans and an old white shirt as we have some colourful play planned.