i am a rare patient

Are you a rare disease patient looking to connect and become more involved?

 

Here, you can find important resources, the latest information, and events to help you navigate the complexities of your rare disease.

By registering with us you’ll gain access to the Rare Communicator App so you can receive relevant updates, join discussions and access resources.


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The answers to all the questions we get asked most often.

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Share your Rare Disease journey via our blog and help to educate, motivate and inspire. By registering with us you’ll gain access to the Rare Communicator App so you can receive relevant updates, join discussions and access resources.


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