Receiving up to date information on the rare disease and congenital disorder landscape in South Africa, and globally.
Support and assistance to see you throughout your patient journey
Peer-to-peer support (connect with others with the same / similar conditions)
Ability to join our closed Facebook group, ask questions and connect
Access to educational support
Access to counselling and emotional support
Helps us improve the data on prevalence and incidence of various rare diseases and congenital disorders
We get to raise awareness and share community stories to educate the public on RDs and CDs
We get a better understanding of what our community needs
how you joining helps us at RDSA
No membership fees, donations are welcome.
Should you wish to contribute, please email with your invoicing details for us to arrange accordingly. All donations are tax-deductible in accordance with Section 18A of the Income Tax Act.
register today as a patient with RDSA and join our rare community