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webinars
We regularly partner with various organisations, brands and specialists who are able to provide insightful content and informative feedback on relevant issues, conditions, treatment and regulation changes which may be of interest.
Register for an upcoming webinar or follow our Facebook page for updates and webinar details.
upcoming webinars
- Myasthenia Gravis Awareness MonthFri, 06 JunSocial Media Platforms
- Rett X Conference – JohannesburgSat, 21 JunEagles Nest
- Fundraising: Mandela Day Imagination StationsFri, 18 JulOnline Platforms
- 947 Ride Joburg - Kids Races 2025Sat, 08 NovJohannesburg
- 947 Ride Joburg - Mountain Bike Races 2025Sat, 08 NovJohannesburg
- 947 Ride Joburg - Road Races 2025Sun, 16 NovJohannesburg
past webinars
- Epilepsy in the WorkplaceThu, 05 JunWebinar
- Lupus Awareness Month JHB EventSat, 31 MayEdenvale
- Prader-Willi Syndrome Awareness DayFri, 30 MaySocial Media Platforms
- Huntington's DiseaseThu, 29 MaySocial Media Platforms
- Crohn’s Disease (IBD) Awareness DayMon, 19 MaySocial Media Platforms
- Hereditary Angioedema (HAE) Awareness MonthFri, 16 MaySocial Media Platforms
- MPS Awareness DayThu, 15 MaySocial Media Platforms
- Osteogenesis Imperfecta Awareness DayTue, 06 MayOnline Platforms
- Fibromyalgia Awareness MonthMon, 05 MayOnline Platforms
- Cystic Fibrosis Awareness MonthMon, 05 MaySocial Media Platforms
- #Run4Rare TTOM 2025Sat, 05 AprCape Town
- World Down Syndrome DayFri, 21 MarAwareness Days
- RARE DISEASE DAY—FAMILY DAYSat, 08 MarWalkhaven Dog Park
- The South African 110 000 Human Genomes ProjectWed, 13 NovTeams Webinar
- National Inherited Disorders DayTue, 01 OctAwareness Days
- World Heart DaySun, 29 SeptAwareness Days
- World Lung DayWed, 25 SeptAwareness Days
- Usher Syndrome Awareness DaySat, 21 SeptAwareness Days
Webinars
Webinars

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