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webinars and events
We regularly partner with various organisations, brands and specialists who are able to provide insightful content and informative feedback on relevant issues, conditions, treatment and regulation changes which may be of interest.
Register for an upcoming webinar or follow our Facebook page for updates and webinar details.
upcoming events
- Bereaved Parents Awareness MonthTue, 08 JulOnline Platforms
- Juvenile Arthritis Awareness DayTue, 08 JulOnline Platforms
- Cleft Palate and Cranio-Facial AwarenessTue, 08 JulOnline Platforms
- Arachnorditis Awareness MonthTue, 08 JulOnline Platforms
- Fragile X Awareness DayTue, 22 JulOnline Platforms
- Acute Necrotix EncephalopothyWed, 23 JulOnline Platforms
- World Castleman Disease DayWed, 23 JulOnline Platforms
- World Hepatitis DayMon, 28 JulOnline Platforms
- Rheumatic Fever & Rheumatic Heart Disease Awareness WeekFri, 01 AugAwareness Day
- Auto-inflammatory Awareness MonthFri, 01 AugOnline Platforms
- Spinal Muscular Atrophy Awareness MonthFri, 01 AugOnline Platforms
- Gastroparesis Awareness MonthFri, 01 AugOnline Platforms
- 947 Ride Joburg - Road Races 2025Sun, 26 OctJohannesburg
past events
- Fundraising: Mandela Day Imagination StationsFri, 18 JulOnline Platforms
- Ehlers-Danlos syndrome: Reviewing the diagnostic utility of genetic testing for EDSWed, 02 JulTeams Virtual Event
- Rett X Conference – JohannesburgSat, 21 JunEagles Nest
- Happy World Sickle Cell Day!Thu, 19 JunSocial Media Platforms
- Myasthenia Gravis Awareness MonthFri, 06 JunSocial Media Platforms
- Epilepsy in the WorkplaceThu, 05 JunWebinar
- Lupus Awareness Month JHB EventSat, 31 MayEdenvale
- Prader-Willi Syndrome Awareness DayFri, 30 MaySocial Media Platforms
- Huntington's DiseaseThu, 29 MaySocial Media Platforms
- Crohn’s Disease (IBD) Awareness DayMon, 19 MaySocial Media Platforms
- Hereditary Angioedema (HAE) Awareness MonthFri, 16 MaySocial Media Platforms
- MPS Awareness DayThu, 15 MaySocial Media Platforms
- Osteogenesis Imperfecta Awareness DayTue, 06 MayOnline Platforms
- Fibromyalgia Awareness MonthMon, 05 MayOnline Platforms
- Cystic Fibrosis Awareness MonthMon, 05 MaySocial Media Platforms
- #Run4Rare TTOM 2025Sat, 05 AprCape Town
- World Down Syndrome DayFri, 21 MarAwareness Days
- RARE DISEASE DAY—FAMILY DAYSat, 08 MarWalkhaven Dog Park
Webinars
Webinars

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