Collaborative Meeting_edited.jpg
0 DAYS TO THE EVENT
Time
07 Oct, 16:00 – 17:30
Location
Zoom Webinar

This webinar is aimed at educating the public on the use of Off-Label Medication-Education on the SAHPRA process and medical regulations to enhance public understanding and mitigating confusion regarding the use of unregistered medication. 

We are thrilled to have partnered with SAHTAC, Path and SAHPRA to inform our followers about understanding Section 21 and off-label products.

Join us on Thursday 07 October at 4pm, as we go into more detail about this vital part of our lives and treatments.

what you'll learn

  • Off-Label Medication Education

  • Medical Regulations

  • Unregistered Medication

  • SAHPRA process

  • Better understanding of this usage

Artboard 75-8.png

requirements

  • Stable internet connection

  • Smart device

speaker profile

Kelly du Plessis
CEO Rare Diseases South Africa

Kelly du Plessis is wife and mother of two children (aged 10 and 11) and the CEO and founder of Rare Diseases South Africa, a registered NPO. Rare Diseases SA was born out of necessity when her oldest child, Juan, was diagnosed with Pompe disease at 11 months old. Pompe disease is a rare, neuromuscular disorder which is fatal if left untreated. At the time, treatment for this rare condition was not available in South Africa, and so Kelly’s personal journey of patient advocacy started.

Having dedicated her life and career to furthering the plight of those impacted by rare diseases in developing countries, Kelly serves on various boards and committees which focus on improving the quality of life for rare patients.

In eight years, Kelly has taken Rare Disease policy and patient advocacy to new heights in South Africa and has presented at various national and international conferences to raise awareness and create a new narrative in terms of treatment and access for rare patients. Understanding the isolation and lack of support surrounding a rare disease diagnosis, providing a safe place for patients as well as families, and improving patient-centred care has become her passion. There are over 6500 patients and families impacted by rare diseases, and Kelly has assisted these individuals and ensured that patients’ voices are not forgotten.

interested?

other upcoming events

  • Haemophilia SA Advocacy Workshop 3
    Zoom Webinar
    18 Oct, 15:00 – 17:00
    Zoom Webinar
  • Caring for MS (in celebration of caregiver month)
    https://us02web.zoom.us/webinar/register/WN
    03 Nov, 19:00 – 20:00 SAST
    https://us02web.zoom.us/webinar/register/WN
  • 947 RIDE JOBURG 2021
    Johannesburg
    21 Nov, 05:30
    Johannesburg, Soccer City Ave, Nasrec, Johannesburg, 2147, South Africa