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webinars and events
We regularly partner with various organisations, brands and specialists who are able to provide insightful content and informative feedback on relevant issues, conditions, treatment and regulation changes which may be of interest.
Register for an upcoming webinar or follow our Facebook page for updates and webinar details.
upcoming events
Bereaved Parents Awareness MonthTue, 08 JulOnline Platforms
Juvenile Arthritis Awareness DayTue, 08 JulOnline Platforms
Cleft Palate and Cranio-Facial AwarenessTue, 08 JulOnline Platforms
Arachnorditis Awareness MonthTue, 08 JulOnline Platforms
Fragile X Awareness DayTue, 22 JulOnline Platforms
Acute Necrotix EncephalopothyWed, 23 JulOnline Platforms
World Castleman Disease DayWed, 23 JulOnline Platforms
World Hepatitis DayMon, 28 JulOnline Platforms
Rheumatic Fever & Rheumatic Heart Disease Awareness WeekFri, 01 AugAwareness Day
Auto-inflammatory Awareness MonthFri, 01 AugOnline Platforms
Spinal Muscular Atrophy Awareness MonthFri, 01 AugOnline Platforms
Gastroparesis Awareness MonthFri, 01 AugOnline Platforms
947 Ride Joburg - Road Races 2025Sun, 26 OctJohannesburg
past events
Fundraising: Mandela Day Imagination StationsFri, 18 JulOnline Platforms
Ehlers-Danlos syndrome: Reviewing the diagnostic utility of genetic testing for EDSWed, 02 JulTeams Virtual Event
Rett X Conference – JohannesburgSat, 21 JunEagles Nest
Happy World Sickle Cell Day!Thu, 19 JunSocial Media Platforms
Myasthenia Gravis Awareness MonthFri, 06 JunSocial Media Platforms
Epilepsy in the WorkplaceThu, 05 JunWebinar
Lupus Awareness Month JHB EventSat, 31 MayEdenvale
Prader-Willi Syndrome Awareness DayFri, 30 MaySocial Media Platforms
Huntington's DiseaseThu, 29 MaySocial Media Platforms
Crohn’s Disease (IBD) Awareness DayMon, 19 MaySocial Media Platforms
Hereditary Angioedema (HAE) Awareness MonthFri, 16 MaySocial Media Platforms
MPS Awareness DayThu, 15 MaySocial Media Platforms
Osteogenesis Imperfecta Awareness DayTue, 06 MayOnline Platforms
Fibromyalgia Awareness MonthMon, 05 MayOnline Platforms
Cystic Fibrosis Awareness MonthMon, 05 MaySocial Media Platforms
#Run4Rare TTOM 2025Sat, 05 AprCape Town
World Down Syndrome DayFri, 21 MarAwareness Days
RARE DISEASE DAY—FAMILY DAYSat, 08 MarWalkhaven Dog Park
Webinars
Webinars
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Understanding Clinical Trials
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Understanding Section 21 and off-label products
01:06:40
Getting to know ITP & MF
01:04:20
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