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webinars

We regularly partner with various organisations, brands and specialists who are able to provide insightful content and informative feedback on relevant issues, conditions, treatment and regulation changes which may be of interest.

 

Register for an upcoming webinar or follow our Facebook page for updates and webinar details.

upcoming webinars

  • Understanding Pulmonary Fibrosis
    Understanding Pulmonary Fibrosis
    Tue, 28 May
    Zoom
    28 May 2024, 19:00 – 20:00
    Zoom
    28 May 2024, 19:00 – 20:00
    Zoom
    Interstitial lung disease (ILD) serves as an overarching term encompassing a diverse array of conditions characterized by the scarring, or fibrosis, of lung tissue. Among these conditions lies pulmonary fibrosis, a specific affliction where the lungs progressively develop scar tissue over time.
  •  Primary Mitochondrial Disease – A Global Energy Crisis
     Primary Mitochondrial Disease – A Global Energy Crisis
    Tue, 04 Jun
    Zoom Webinar
    04 Jun 2024, 11:00 – 12:00
    Zoom Webinar
    04 Jun 2024, 11:00 – 12:00
    Zoom Webinar
    Join us this June for an intriguing webinar featuring Professor Rahman and Mrs Meldau as they delve into the depths of primary mitochondrial disease. Gain unique insights from their expertise as they unravel the complexities of this condition.
  •  Medical Aid Madness: Are Your Benefits Burning You Out?
     Medical Aid Madness: Are Your Benefits Burning You Out?
    Wed, 21 Aug
    Zoom
    21 Aug 2024, 19:00 – 20:00
    Zoom
    21 Aug 2024, 19:00 – 20:00
    Zoom
    Join our webinar to unravel the complexities of your medical aid! Learn strategies to prevent flare-ups and maximize your benefits with expert guidance. Don’t let confusion compromise your care—master your medical aid and stay healthy! Secure Your Spot Now! Transform how you handle your health cove
  • Denim Walk 2024
    Denim Walk 2024
    Tue, 24 Sept
    Walter Sisulu National Botanical Garden
    24 Sept 2024, 18:00 – 20:00
    Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa
    24 Sept 2024, 18:00 – 20:00
    Walter Sisulu National Botanical Garden, Malcolm Rd, Poortview, Roodepoort, 1724, South Africa
    Denim Walk – a fun-for-all, evening walk through the beautiful Walter Sisulu National Botanical Gardens. Come and #ShareYourColour with our RARE community, your friends and your family. And please, be sure to wear jeans and an old white shirt as we have some colourful play planned.
  • Williams Syndrome Awareness Month
    Williams Syndrome Awareness Month
    Date and time is TBD
    Awareness Days
    Date and time is TBD
    Awareness Days
    Date and time is TBD
    Awareness Days
    Williams Syndrome Awareness Month is observed annually in May to raise awareness about Williams syndrome, a rare genetic condition characterised by developmental delays, unique facial features, and cardiovascular issues.

past webinars

  • World Health Day
    World Health Day
    Sun, 07 Apr
    Awareness Days
    07 Apr 2024, 00:00 – 23:50
    Awareness Days
    07 Apr 2024, 00:00 – 23:50
    Awareness Days
    World Health Day, celebrated annually on April 7th, promotes global awareness and action on pressing health issues.
  • World Autism Day
    World Autism Day
    Tue, 02 Apr
    Awareness Days
    02 Apr 2024, 10:08 – 23:50
    Awareness Days
    02 Apr 2024, 10:08 – 23:50
    Awareness Days
    World Autism Awareness Day on April 2nd promotes acceptance, inclusion, and understanding of individuals with autism worldwide.The date of World Down Syndrome Day was chosen to represent the uniqueness of the triplication
  • Purple Day for Epilepsy
    Purple Day for Epilepsy
    Tue, 26 Mar
    Awareness Days
    26 Mar 2024, 00:00 – 23:50
    Awareness Days
    26 Mar 2024, 00:00 – 23:50
    Awareness Days
    Purple Day is a global grassroots movement dedicated to raising awareness about epilepsy.
  • World Down Syndrome Day
    World Down Syndrome Day
    Thu, 21 Mar
    Awareness Days
    21 Mar 2024, 00:00 – 23:50
    Awareness Days
    21 Mar 2024, 00:00 – 23:50
    Awareness Days
    World Down Syndrome Day (WDSD), observed on March 21, is a global awareness day recognise since 2012. World Down Syndrome Day (WDSD), observed on March 21, is a global awareness day recognise since 2012. The date of World Down Syndrome Day was chosen to represent the uniqueness of the triplication
  • World Kidney Day
    World Kidney Day
    Thu, 14 Mar
    Awareness Days
    14 Mar 2024, 00:00 – 23:50
    Awareness Days
    14 Mar 2024, 00:00 – 23:50
    Awareness Days
    Today, we honour and raise awareness about the importance of kidney health worldwide.
  • World Glaucoma Week
    World Glaucoma Week
    Tue, 12 Mar
    Awareness Days
    12 Mar 2024, 00:00 – 23:50
    Awareness Days
    12 Mar 2024, 00:00 – 23:50
    Awareness Days
    World Glaucoma Week highlights glaucoma as the leading cause of preventable irreversible blindness worldwide.
  • Preventing Neural Tube Defects: Global and South African Perspectives on Folic Acid Staple Food Fortification
    Preventing Neural Tube Defects: Global and South African Perspectives on Folic Acid Staple Food Fortification
    05 Mar 2024, 16:00 – 17:00
    Zoom
    Join Dr Vijaya Kancherla in this CPD accredited webinar as she explores the effective approach of fortifying staple foods with folic acid to reduce neural tube defects - a simple yet impactful strategy in preventing a congenital disorder.
  • Rare Disease Day 2024
    Rare Disease Day 2024
    Thu, 29 Feb
    South Africa
    29 Feb 2024, 00:00 – 23:50
    South Africa
    29 Feb 2024, 00:00 – 23:50
    South Africa
  • Patient Advocacy Group Workshop - RareX 2024
    Patient Advocacy Group Workshop - RareX 2024
    Sat, 17 Feb
    Hybrid Event (In Person is preferred)
    17 Feb 2024, 08:00 – 16:30
    Hybrid Event (In Person is preferred)
    17 Feb 2024, 08:00 – 16:30
    Hybrid Event (In Person is preferred)
    Join us for an interactive workshop focused on fundraise for healthcare organisations, and engaging policy makers within healthcare.
  • RareX 2024
    RareX 2024
    Wed, 14 Feb
    Indaba Hotel
    14 Feb 2024, 08:00 – 17 Feb 2024, 17:00
    Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa
    14 Feb 2024, 08:00 – 17 Feb 2024, 17:00
    Indaba Hotel, William Nicol Drive, Pieter Wenning Road Johannesburg, Fourways, Sandton, 2191, South Africa
    The Third Biennial Rare Diseases Conference will take place in Johannesburg from 14-17 Feb 2024. The purpose of the conference is to provide a forum for rare disease patients, doctors and stakeholders to connect & collaborate, and to facilitate an ongoing dialogue on rare diseases & their treatment.
  • Huddle 5:  STAKEHOLDER ROUNDTABLE
    Huddle 5:  STAKEHOLDER ROUNDTABLE
    Thu, 30 Nov
    Hybrid Event
    30 Nov 2023, 08:50 – 13:30
    Hybrid Event
    30 Nov 2023, 08:50 – 13:30
    Hybrid Event
    Engagement with stakeholders on selected Presidential Health Compact pillars with break-out groups to ensure patient engagement on items included in compact activities.
  • Patient Huddle 4: INCORPORATING HEALTH LITERACY INTO ADVOCACY
    Patient Huddle 4: INCORPORATING HEALTH LITERACY INTO ADVOCACY
    Mon, 27 Nov
    Online Workshop
    27 Nov 2023, 16:00 – 28 Nov 2023, 16:30
    Online Workshop
    27 Nov 2023, 16:00 – 28 Nov 2023, 16:30
    Online Workshop
    Capacity building on health literacy and how it incorporates into patient group activities.