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Usher Syndrome Awareness Day

Sat, 21 Sept

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Awareness Days

Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 21 this year. This rare genetic disease has long gone unrecognized, but many are working hard to bring it to light. Usher syndrome affects eyesight, hearing, and mobility

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Usher Syndrome Awareness Day
Usher Syndrome Awareness Day

Time & Location

21 Sept 2024, 00:00 – 23:50

Awareness Days

About the Event

Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 21 this year. This rare genetic disease has long gone unrecognized, but many are working hard to bring it to light. Usher syndrome affects eyesight, hearing, and mobility. The main issue is that it could take years for these symptoms to develop. Children are often diagnosed with hearing loss first, unbeknownst to them and their parents that they may go blind as well. This disease has no known cure, but much research is being done to help those suffering from it.

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

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Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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