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Raising Awareness for Pitt Hopkins Syndrome: A Journey with My 6-Year-Old Daughter
In March of this year, our family received a diagnosis that changed our lives — Pitt Hopkins Syndrome. As we navigate this new reality,...
Hlumela Tshijila
Sep 183 min read
Rare Diseases South Africa Brings “Safe Beginnings” to Charlotte Maxeke for World Patient Safety Day
Johannesburg, South Africa – 17 September 2025 – The bustle of Charlotte Maxeke Johannesburg Academic Hospital looks a little different...
marketing84105
Sep 172 min read
20 Years in the Dark: My Journey to an Ehlers-Danlos Syndrome Diagnosis
Supplied: Chloe Davies, Age 24 I was diagnosed with Ehlers-Danlos Syndrome (EDS) just last year — but my symptoms started when I was only...
Hlumela Tshijila
May 292 min read
Unified Effort: South Africa's Commitment to Disability Inclusion
18 April 2025 - Johannesburg. Rare Diseases South Africa (RDSA) is excited to share some important updates regarding South Africa's...
Rare Diseases SA
Apr 183 min read
Request to Minister of Health regarding WHA Resolution on Rare Diseases
Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution
Rare Diseases SA
Aug 8, 20243 min read
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