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Tell us what's going on

You don't need to have it all worked out, or explain it perfectly. Give us a rough idea and a navigator will come back to you.

Need to speak to someone now?

If this is urgent, call the helpline rather than filling in the form. Someone will answer.

Support helpline

Some things are easier to talk through than to type. Both Whatsapp and phonecalls are supported.

How would you like us to contact you?
Who are you contacting us about?
Where are you in the journey? (optional)

What happens next?

  1. Your message goes to our patient services team, not a general inbox.

  2. A navigator reads it and comes back to you, usually by email unless you've asked us to call.

  3. If we're not the right people to help, we'll tell you and point you to who is.

This service is free

You don't need a confirmed diagnosis, a medical aid, or a referral. There's no cost and no catch.

Feeling down?

If you are in crisis or struggling to keep yourself safe, please contact SADAG on 0800 567 567, or their suicide crisis line on 0800 12 13 14. Both are free and available 24 hours.

Other ways to reach us

Helpline

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072 476 7552​​

You don't have to face it alone.

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Contact us

Get in touch​

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+27 10 594 3844

Support hotline: +27 72 476 7552

hello@rarediseases.co.za

Find us​

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39A Kingfisher Drive

Fourways, 2191

Johannesburg

NPO 120-991    NPC 2016/071131/08    PBO 930060119
© 2026 Rare Diseases South Africa NPC.  Rights reserved.   Privacy policy   

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