Be Brave Box – What to Pack
If you or your company are looking for an initiative to support this Mandela Day (18 July 2019), then consider the Be Brave Box project...
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Rare Diseases SA
- Jul 28, 2019
- 2 min
Actress Selma Blaire keeps fans updated on her MS Battle
47 year old actress, Selma Blair is actively updating her followers on the latest in her battle with Multiple Sclerosis after recently...
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Rare Diseases SA
- Jul 28, 2019
- 3 min
HOW TO CHANGE LIVES… BY RIDING YOUR BIKE
If you’ve always threatened to take part in the 947 Cycle Challenge but have been intimidated by the distance… then this year is your...
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Rare Diseases SA
- Jul 23, 2019
- 2 min
The Cost of Providing “Invisible Services”
Words: Kelly du Plessis Another Mandela Day has gone, charities around the country have had an injection of hope that help is on the way....
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Rare Diseases SA
- Jul 19, 2019
- 3 min
Top 10 Things to Pack in your Hospital Bag
Unlike those who pop in to hospitals for routine procedures such as tonsil removal, wisdom teeth extraction or grommets and are released...
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Rare Diseases SA
- Jul 17, 2019
- 1 min
Disability Emoji’s Released on World Emoji Day
Today is World Emoji Day and in an attempt to better represent those with disabilities, Apple and Google have shared sneak peaks into a...
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Rare Diseases SA
- Jul 14, 2019
- 1 min
Dad turns Bed Sheets into Boardgames to Fight Boredom
No one will understand boredom more than a child hospitalised for extended periods of time. There are only so many movies to watch and...
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Rare Diseases SA
- Jul 12, 2019
- 1 min
South African Breast Milk Reserve appeals for breastmilk donations
The South African Breastmilk Reserve is appealing to nursing mothers to donate breast milk. Executive director Stasha Jordan tells Joanne...
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Rare Diseases SA
- Jul 8, 2019
- 2 min
Special Delivery: A Drone Just Flew a Kidney to a Transplant Patient
On the 19th of April, a custom-made drone lifted off from southwestern Baltimore in the USA and airlifted a human kidney to a nearby...
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Rare Diseases SA
- Jul 3, 2019
- 2 min
New Fund to provide financial Support for Singaporean Rare Disease Patients
A new charity fund has been set up to help Singaporeans with rare diseases who cannot afford treatment. The Rare Disease Fun, established...
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Rare Diseases SA
- Jun 14, 2019
- 2 min
Scientists Develop a “Universal” Blood Type
Sourcing matching blood types may soon be a thing of the past as scientists have developed a revolutionary technique for creating a...
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Rare Diseases SA
- Jun 14, 2019
- 2 min
American Retailer, Kohls, offers Adaptive Clothing Range for Kids & Young Adults
American retail giant, Kohls, recently announced a new line of adaptive clothing for children and young adults, through three of its...
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Rare Diseases SA
- Jun 12, 2019
- 2 min
Webinar Wednesdays: 5 Reasons to Join
You may have seen our monthly Webinar Wednesday posts on various topics to do with rare diseases and issues affecting our rare community....
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Rare Diseases SA
- Jun 10, 2019
- 1 min
How Artificial Intelligence (AI) is being used to detect Rare Diseases
Scientists have developed an artificial intelligence (AI) system that uses portrait photographs (facial analysis), in combination with...
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Rare Diseases SA
- May 30, 2019
- 4 min
Prader-Willi Syndrome (PWS) Awareness day 31st of May: The first home for Adults with PWS
Prader-Willi Syndrome (PWS) is a rare genetic disorder caused as a result to damage on Chromosome 15. People with this condition have...
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Rare Diseases SA
- May 27, 2019
- 2 min
Survivor Star Tackles Most Dangerous Peak for Dread Diseases
Nicole Capper has a number of titles to her name, including Mrs South Africa (2018), Functional Medicine pharmacist, model, MC and...
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Rare Diseases SA
- Apr 17, 2019
- 3 min
6.9 million People worldwide have a bleeding disorder, 75 % of them do not know it!
WORLD HEMOPHILIA DAY 17th April 2019: “Reach OUT : The FIRST STEP to CARE” Lets Change the World for ONE PERSON at a time and help reduce...
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Rare Diseases SA
- Apr 17, 2019
- 3 min
2019 DECLARATION OF CHILDREN’S RIGHT TO PALLIATIVE CARE
PatchSA are calling on all South African’s to sign the Declaration, to show support for the right of every child in South Africa to...
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Rare Diseases SA
- Apr 9, 2019
- 2 min
HIGH LEVEL NATIONAL STAKEHOLDER MEETING FOR CHILDREN WITH SERIOUS ILLNESS
On 18 March, a high level national stakeholder meeting for children with serious illness took place in Johannesburg. Rare Diseases SA was...
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Rare Diseases SA
- Mar 7, 2019
- 1 min
Rare Diseases in South Africa: Bridging the Gap for Inclusive Healthcare
Rare diseases are an area of healthcare which has been neglected in the past, predominantly due to the high cost of drug research and the...
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