South Africa’s GDP allocation to healthcare research is under 0.3% - a far cry from where it should be.

In September 2019, Member States of the United Nations, including South Africa, signed the most comprehensive and ambitious declaration...

WHAT IS ADVOCACY? Whilst we are spending the month of Feb re-framing what the world thinks about Rare, we thought we spend just one day...

Rare Diseases South Africa (RDSA) has released the statement below in response to the signing of the Presidential Health Compact and in...

A 12-year-old American girl has come up with an ingenious product to ease the anxieties of paediatric patients just like her. Ella Casano...

If you or your company are looking for an initiative to support this Mandela Day (18 July 2019), then consider the Be Brave Box project...

47 year old actress, Selma Blair is actively updating her followers on the latest in her battle with Multiple Sclerosis after recently...

If you’ve always threatened to take part in the 947 Cycle Challenge but have been intimidated by the distance… then this year is your...

Words: Kelly du Plessis Another Mandela Day has gone, charities around the country have had an injection of hope that help is on the way....

Unlike those who pop in to hospitals for routine procedures such as tonsil removal, wisdom teeth extraction or grommets and are released...

Today is World Emoji Day and in an attempt to better represent those with disabilities, Apple and Google have shared sneak peaks into a...

No one will understand boredom more than a child hospitalised for extended periods of time. There are only so many movies to watch and...

The South African Breastmilk Reserve is appealing to nursing mothers to donate breast milk. Executive director Stasha Jordan tells Joanne...

On the 19th of April, a custom-made drone lifted off from southwestern Baltimore in the USA and airlifted a human kidney to a nearby...

A new charity fund has been set up to help Singaporeans with rare diseases who cannot afford treatment. The Rare Disease Fun, established...

Sourcing matching blood types may soon be a thing of the past as scientists have developed a revolutionary technique for creating a...

American retail giant, Kohls, recently announced a new line of adaptive clothing for children and young adults, through three of its...

You may have seen our monthly Webinar Wednesday posts on various topics to do with rare diseases and issues affecting our rare community....

Scientists have developed an artificial intelligence (AI) system that uses portrait photographs (facial analysis), in combination with...

Prader-Willi Syndrome (PWS) is a rare genetic disorder caused as a result to damage on Chromosome 15. People with this condition have...