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Join the collective voice.

Formal annual membership for organisations working in and around rare disease and congenital disorders. Visibility with the community you serve, access to the networks that matter, and a seat alongside the organisations shaping this space in South Africa.

Who it's for

Laboratories and diagnostic companies

Research

Institutions

Healthcare

companies

Non-profit 

organisations

Pharmaceutical and industry partners are better served by the Rare Disease Partnership Programme.

What membership includes

Referrals and visibility

A listing and link on the RDSA website and across our social media platforms, so that patients, families and clinicians looking for your services can find you.

Kept in the loop

Addition to our membership and advocacy mailing lists, with:

  • Regular and breaking member alerts

  • The RDSA e-newsletter

  • Immediate receipt of media statements and releases

Profiling of your services

Your specific services profiled in relevant RDSA communication fora, including an announcement as a corporate partner in our quarterly newsletter.

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Events and endorsements

Sponsorship opportunities at relevant RDSA events, and use of the RDSA logo as an endorsement on relevant events and communications (with prior approval).

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And the part that isn't a line item

Membership makes you part of the unified, collective voice of RDSA and the rare disease and congenital disorder community in South Africa. When we go to medical schemes, regulators or the Department of Health, we go representing that community, and our members are part of it.

What it costs

Membership fees are scaled to annual turnover. Send us an enquiry and we will come back to you with where you would sit.

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  • Start up companies (first 2 years of trading): R2750 per year

  • Microbusinesses (<R5million annual turnover): R5500 per year

  • Small businesses (Between R5mill-R22million annual turnover): R11500 per year

  • Medium businesses (above R22million annual turnover): R30000 per year

A note on independence

We cap income from pharmaceutical and related industries at one third of total funding, so that our advocacy stays independent. Membership buys visibility and access to the community, it does not buy influence over our positions and views.

Not sure if this is the right fit?

Tell us what your organisation does and what you are hoping to achieve, and we will point you to the right route.

Start a conversation

Register as a corporate member

Note: Pharmaceutical and industry partners are better served by the Rare Disease Partnership Programme.

About your organisation

Multi-line address
Which sector best describe your company?
Annual turnover

Company representative

Working together

The legal stuff

You don't have to face it alone.

Explore

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Get help

Partner with us

Get involved

Our work

Contact us

Get in touch​

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+27 10 594 3844

Support hotline: +27 72 476 7552

hello@rarediseases.co.za

Find us​

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39A Kingfisher Drive

Fourways, 2191

Johannesburg

NPO 120-991    NPC 2016/071131/08    PBO 930060119
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