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We could use the help

Events need hands. So does admin, packing, and the unglamorous work that keeps a small organisation doing national work. If you have time to give, we'll find a good use for it.

What we actually need

We prefer being upfront, because "volunteer with us" is pretty vague until someone tells you what the actual work is.

Event days

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Registration desks, water points, packing goodie bags, setting up and breaking down. The busiest need, and the easiest to start with.

Skills we're short of​

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Photography, video, design, translation, legal or financial advice. If you do something we can't afford to buy, tell us.

Caring for a patient in need

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Sometimes a patient needs some additional support. It may be a grocery run, a pharmacy pick up or someone to read them a book.

What we ask for, and what you can expect from us

From you

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Turn up when you say you will, and tell us early if you can't. That's most of it. There's no minimum commitment and no guilt if life gets busy.

From us

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We'll tell you what the task actually involves before you commit, brief you properly on the day, and not waste your time. You'll be working alongside the team, not parked somewhere out of the way.

Before you start

There's a short onboarding to complete, and a volunteer agreement to sign. It isn't onerous, and we'd rather tell you now than spring it on you later.

Onboarding

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A short induction with a team member covering what we do, how we work with patients and families, and what's expected of you on the day.

Volunteer agreement

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Covers confidentiality and how patient information is handled, in line with POPIA. Our community trusts us with sensitive information, and that trust extends to everyone working alongside us.

Got time?

Tell us roughly what you'd like to do and how often.

We'll come back to you when something fits.

Volunteer with us

Tell us about yourself...

Birthday
Year
Month
Day
Multi-line address

We will never share your picture without your permission.

How are you able to help?

Which days are you available?
Weekdays
Weekends
Any day suits me
Preferred time slots*
Mornings
Afternoons
Evenings
I am flexible
Which areas would you like to volunteer in?

Experience & Motivation

The legal stuff...

You don't have to face it alone.

Explore

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Get help

Partner with us

Get involved

Our work

Contact us

Get in touch​

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+27 10 594 3844

Support hotline: +27 72 476 7552

hello@rarediseases.co.za

Find us​

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39A Kingfisher Drive

Fourways, 2191

Johannesburg

NPO 120-991    NPC 2016/071131/08    PBO 930060119
© 2026 Rare Diseases South Africa NPC. Rights reserved.   Privacy policy   PAIA manual

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