Giving your movement purpose
Time, money or sweat. However you're able to give, it goes to the same place: a rare community that shouldn't have to do this alone.
Sweat
Use your mobility to benefit those without it
Rare ACTIVists
Run, ride or swim, competitively or just for the fun of it, and turn it into fundraising and awareness. Ride Joburg, Swim4Sadie, Run4Rare, or an event of your own.
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Get active
Upcoming events
See what's coming up, from organised rides to community days, and pick something to train for.​
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Check out the calendar
Time
Hands, hours and the work that keeps things running
Volunteer
Events need hands. So does admin, packing, and the unglamorous work that keeps a non-profit running. If you have time to give, we'll find a good use for it.
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Volunteer with us
Charity Champion
People who raise funds and awareness in their own communities, in their own way. Birthday fundraisers, work collections, school drives, whatever fits your life.​
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Become a champion
Money
Direct funding for navigation, resources and community work.
Donate
One-off or monthly. Monthly giving is what lets us plan ahead, keep navigators employed, and still be answering the phone in six months' time. Every donation is Section 18A tax deductible.
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Donate now
Rare Bear Project
A handmade bear that does two jobs: it goes to a child in the rare community, and it pays a woman in Kya Sands for making it. Of every R200, R180 goes straight to the maker.
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Donate a bear
Where your money goes
R57
Covers a navigator's support for one family through diagnosis.
R100
Ensures a patient has transport money to attend appointments and treatments
R250
Gifts a welcome resource pack, including a Rare Bear, to a newly diagnosed patient.
As a registered PBO, we issue Section 18A tax certificates, so your donation is tax deductible. We are a registered NPO, NPC and PBO, and our financials are available on request.
Not sure which one is you?
Most people like wetting their toes before fully committing.
Start anywhere.