

Unified Effort: South Africa's Commitment to Disability Inclusion
18 April 2025 - Johannesburg. Rare Diseases South Africa (RDSA) is excited to share some important updates regarding South Africa's...
3 min read


Running for Awareness, a Sister’s Fight Against a Rare and Painful Disease
Living with Epidermolysis Bullosa (EB) is a daily battle. Often referred to as “butterfly skin” disease , EB is a rare genetic disorder...
3 min read


Building an Inclusive Future: Human Rights Day and World Down Syndrome Day 2025
On Friday, 21 March 2025 , South Africa observes both Human Rights Day and World Down Syndrome Day (WDSD) —a meaningful intersection...
2 min read