My symptoms began in childhood, but everyone said it was “growing pains". I went from doctor to doctor, and each one dismissed me. They told me it was all in my head, that I was depressed, that I was a hypochondriac who wanted attention. At one point I was even told I had fibromyalgia, but deep down I knew that was not the answer. I had a gut feeling that something else was wrong. After years of being unheard, I finally gave up searching for help at age thirty. It was only af

I was born with something I did not choose. It is a rare genetic condition passed down and written into me before I ever had a say. TMAU. For a long time, I did not know its name. I only knew the feeling of being different, even when I could not explain why. When I was younger, it was not so obvious. I could blend in. I could feel normal. But as I grew older, the condition grew with me. The odor became stronger, harder to control, and harder to hide. No matter how much I tri

In June 2024, our three‑month‑old son, Juván , suddenly became severely ill with unrelenting diarrhea. What seemed like a simple virus became a long and terrifying medical journey. After months of hospital stays, countless tests, and endless uncertainty, he was diagnosed with Autoimmune Enteropathy (AIE)  — a rare, life‑threatening condition where the immune system destroys the small intestine, preventing the body from absorbing nutrients. Despite breastfeeding, specialised f