In 2012 at the age of 15 I was finally diagnosed with Idiopathic Intracranial Hypertension after years of doctors dismissing my parents concern of headaches and at some point, vision concerns from the age of 8-9 years old. It took far too long to have a diagnosis but all it took was one doctor to listen. They did the relevant testing and found that I had too much cerebrospinal fluid. As the years went on I progressively got sicker unfortunately. I was in and out of doctors o

For years, I was trapped in an exhausting cycle of psychiatric appointments and medication trials, believing that feeling unwell daily, was my new normal. Despite worsening symptoms — fainting, dizziness, tachycardia, fatigue, food sensitivities, exercise intolerance, brain fog and more — doctors were only able to offer ineffective treatments claiming my symptoms were all related to anxiety and depression. I had a psychiatrist tell me that "I just didn't want to get better" ,

A rare disease…   Where do I begin? Sometimes life forces us to live with our pain. No matter how many times you can smile on a random day, there is still that sad part of you that is hidden deep within. You learn to live with the pain simply because the world keeps moving. You go on living your life as if everything is normal but truly speaking, that is isn’t the case. It’s RARE.   The fact that I am able to put down my experience in writing of a part of me that I wouldn’t h