When Victoria (Vixi)  was diagnosed at just 15 years old  with Behçet’s Disease , everything we thought we knew about her health changed. Behçet’s is a rare, complex inflammatory disorder that most doctors have never seen in their careers. But long before her diagnosis, her symptoms were already shaping her life. Early Signs No One Could Explain Since she was little, Vixi struggled with painful mouth ulcers. We were given many explanations such as stress, vitamin deficiencies

As the last‑born daughter of Thomas and Nombulelo Sidzamba, I, Zintle , never imagined how dramatically my life would change after being diagnosed with Spinal Muscular Atrophy (SMA) Type 4)  in 2015. SMA Type 4 is a rare genetic disorder that affects the nerve cells responsible for voluntary muscle movement, causing progressive muscle weakness and atrophy. Before the Diagnosis Before SMA entered my life, I was active, energetic, and constantly on the move — playing tennis, da

My name is Ruhan Adendorff , I’m 34 years old , and I have a rare condition called Sotos Syndrome . I want to share my story with the world to spread motivation, encouragement, and Sotos love to all my wonderful Sotos people across the globe. My Journey with Sotos Syndrome I was diagnosed with Sotos Syndrome when I was five years old . Growing up as a child with Sotos was not easy. In fact, it was very hard. At school I was bullied and made fun of. People would say things lik