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Our Impact​
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Did you know there are over 7,000 rare diseases?
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Did you know that there are 3.7 million people living with a rare disease in South Africa?
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We’re fighting for these people through advocacy and empowerment. Playing a fundamental role in bridging the gap between vulnerable communities and medical advancement for improved quality of life – Rare Diseases South Africa is the voice for universal healthcare.
764
caregivers


1043
hcp's
1743
patients

1564
rare ACTIVists
97
ambassadors
