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for a

better 

tomorrow

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#1in15 South Africans are affected by rare diseases

That's the equivalent of 1 player in every rugby team! 

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Whilst uniquely they may be rare, with more than 7000 known rare diseases, collectively they are more common than anticipated.

 

At Rare Diseases South Africa, we’re doing our best to support those 4.1 million South Africans who have been, or will be, diagnosed with a rare disease or congenital disorder in their lifetime. 

 

Our mission is to ensure a better tomorrow for all those impacted.

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the lives

 we touch

Rare Diseases South Africa is a registered non-profit organisation (NPO 120-991) advocating for a better tomorrow for the #1in15 South Africans impacted by rare diseases and congenital disorders,  including greater recognition, support, improved health service and better overall quality of life.

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community

become

part of our

Whether you're a patient, carer, family member, healthcare professional or even an athlete willing to use your mobility for the benefit of those without your voice counts and your input matters.

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Get involved and help us to leave a legacy... a better tomorrow.

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giving is 
good medicine

Support Rare Diseases SA, in any way you are able to, and invest in a better tomorrow for the 1 in 15 South Africans that are, or who will be, impacted by a rare disease or congenital disorder at some point in their lives.

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Rare Diseases South Africa is a registered Non-Profit Organisation (NPO 120-991) and relies on donations and contributions from the public to enable us to continue our work in advocacy and research.

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Back the team who supports the #1in15.

upcoming events

  • The South African 110 000 Human Genomes Project
    The South African 110 000 Human Genomes Project
    13 Nov 2024, 11:00 – 12:00
    Teams Webinar
    Join us on for an insightful webinar on the highly anticipated South African 110,000 Human Genomes Project. Ms. Mia is coordinating this groundbreaking initiative and brings firsthand knowledge of the intricacies of this project. What could this mean for all South Africans? Register and find out!
  • 947 Ride Joburg - 2024
    947 Ride Joburg - 2024
    17 Nov 2024, 05:00 – 17:00
    Johannesburg, Soccer City Ave, Nasrec, Johannesburg, 2147, South Africa
    Ride 97 km of traffic-free Joburg streets on your bicycle, using your mobility for the #1in15 South African affected by rare diseases. Sunday 17 November 2024, FNB Stadium, Johannesburg.

let our stories inspire you

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our corporate members

be the first to know

RDSA will be reimplementing our monthly newsletters to update you on our work and the progress we're making within the rare disease and congenital disorder landscape in South Africa.

 

We have four newsletter which will contain unique information based on our four pillars: Community Engagement, Advocacy, Patient Navigation and Research.

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