Fri, 18 Feb|
Living with superficial siderosis - the patient's journey
I would like to let you know the our dedicated Superficial Siderosis clinical research team at University College London (UK) will be running a virtual information sharing event for patients, their families and carers, clinicians and interested members of the public.
Time & Location
18 Feb 2022, 16:00 – 17:00
About the Event
The event will take place on Friday 18th February 2-3 pm (UK/London time).
The event has been registered to mark Rare Disease Day https://www.rarediseaseday.org/event/living-with-superficial-siderosis-the-patients-journey-2/
I would like to invite you to share this information with your community and to join us on the day via this link: https://ucl.zoom.us/j/91205318089
The questions to the panel can be submitted here: https://app.sli.do/event/uig6tz4VVLwFp93nfQquNG
The information about the event can also be found here: https://www.ucl.ac.uk/stroke/patients-carers-and-public/infratentorial-superficial-siderosis-central-nervous-system