Rare Diseases SAOct 21, 20227 minPatient Profiles: Wrongful Diagnosis Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...
Rare Diseases SAOct 21, 20224 minDad Diaries: Life with A Rare Disease Is Anything but Normal As a dad, it was my absolute honour and privilege to be able to give my daughter one of my kidneys on June 22, 2021. This was exactly...