Meet our Team

Kelly du Plessis

Kelly is passionate about patient advocacy and ensuring that all patients receive access to appropriate care. 

Purpose: I need to ensure positive change within the rare disease community for that all those who are impacted, like my son, have an improved quality of life

Quote: "The essence of global health equality is the idea that something so precious as health might be viewed as a right." - Paul Farmer 

Shevaun McCreedy

Apart from being Vice Chair, Co-founder and Head of Rare ACTIVist fundraising events Shevaun McCreedy is a valuable asset to our team and close friend and support for Kelly.  Ever since Kelly’s son was diagnosed with Pompe disease Shevaun was determined to use her marketing and event management skills to make a positive difference.

Purpose: Shevaun is one of the reasons our first fundraising event was such a great success, one that opened many doors to meet members of the Rare Community who were looking to combine efforts for fundraising and create awareness. She continues to use her talents to create awareness and encourage other to use their mobility for our cause.

Quote: "Challenge your Limits, don’t Limit your Challenges."

Jen McClean

Jen is responsible for making sure that everyone is delivering on their individual portfolios, and that we meet out deadlines to ensure we do what we set out to accomplish as an NPO. Jen also handles the marketing for RDSA

Purpose: In a NPO, we all chip in when needed to just get the job done, titles and roles are all quite blurred when the staff understand the bigger picture and that we are all here to work together and help each other when the need arises. It's why I love working for RDSA, the can do attitude of everyone involved is inspiring.

Quote: "Imperfection is beauty, madness is genius and it's better to be absolutely ridiculous than absolutely boring." - Marilyn Monroe

Megan Hunter

Megan is responsible for digital marketing, social media and creating awareness about our patients, and their stories.

Purpose: If anyone can empathize with our rare disease patients it’s Megan. She started out as a Myasthenia Gravis patient & volunteer for RDSA in KZN then became the patient ambassador for this condition & helped create awareness throughout SA.  When her health took a turn for the worse & she had moved to Gauteng, RDSA offered her a position , where she could work when her health allowed & help create awareness.

Quote: "Just keep swimming, just keep swimming," - Dory (Finding Nemo)

Natasha Nass

Tash is responsible for making all things beautiful, and handles all design aspects making sure our brand is always on point. 

Purpose: Going through her own near death experience Tash was seeking meaning through her work. When an opportunity came up at RDSA she grabbed it and hasn't looked back. 

Quote: "You have brains in your head and feet in your shoes. You can go in any direction you choose."- Dr Seuss

Leanne Griffiths

Leanne is responsible for all aspects of communication and stakeholder management.

Purpose:  My purpose is to try be a shining light in a world that can be very dark at times..

Kelly & Juan are related to me. Juan suffers from a rare disease so it was a natural instinct and an easy decision to choose RDSA as an organization that I can apply my strengths and talents. I come from a marketing and PR background and I love marketing so getting involved in the marketing and PR activities is not a job, but rather a calling that I thoroughly enjoy.

Quote:  “Even the smallest act of caring for another person is like a drop of water -it will make ripples throughout the entire pond.” – Jessy and Bryan Matteo

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