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caregiver

registration

the benefits of joining

  • Receiving up to date information on the rare disease and congenital disorder landscape in South Africa, and globally.

  • Support and assistance to see you throughout your caregiver journey

  • Peer-to-peer support (connect with others caring for loved ones with the same / similar conditions)

  • Ability to join our closed Facebook group, ask questions and connect

  • Access to educational support

  • Access to counselling and emotional support

  • Improved awareness

  • Helps us improve the data on prevalence and incidence of various rare diseases and congenital disorders

  • We get to raise awareness and share community stories to educate the public on RDs and CDs

  • We get a better understanding of what our community needs

how you joining helps us at RDSA
costs for
caregiver membership

No membership fees, donations are welcome.
Should you wish to contribute, please email with your invoicing details for us to arrange accordingly. All donations are tax-deductible in accordance with Section 18A of the Income Tax Act.

Your Details

Multi-line address
Birthday
Year
Month
Day
Gender
Male
Female
Would rather not say
Other

Tell us about the Patient you care for

Is the patient currently registered with RDSA?
Yes
No
I am not sure

Tell us about yourself

This helps our team connect with you on a personal level.

Your photo will never be shared publicly without your written consent.

Are you a member of a caregiver or patient support group?
Yes
No
No, but would like to be
How did you hear about RDSA?
Preferred way for us to contact you

Getting involved

Consent and Declaration

register today as a caregiver with RDSA and join our rare community
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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

©2025  Rare Diseases South Africa NPC

Rights reserved

RDSA Privacy Policy 

Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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