Batten Disease Awareness Day

Batten Disease Awareness Day is observed annually on June 9 to raise awareness about Batten disease, a rare and fatal neurological disorder. The day aims to connect and spread awareness about the disorder, support affected families, and promote research into understanding the condition. Various activities and events are organized to engage the global Batten community, including fundraising efforts, storytelling projects, and community building initiatives. The day is a significant opportunity for families, advocates, and organizations to come together and advocate for the Batten disease community.