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Facioscapulohumeral Muscular Dystrophy (FSHD) Day

Sat, 20 Jun

|

Online Platforms

World FSHD Day is held every year and aims to raise awareness for this debilitating form of muscular dystrophy.

Facioscapulohumeral Muscular Dystrophy (FSHD) Day
Facioscapulohumeral Muscular Dystrophy (FSHD) Day

Time & Location

20 Jun 2026, 00:00 – 23:50

Online Platforms

About the Event

World FSHD Day is held every year on June 20th and aims to raise awareness for this debilitating form of muscular dystrophy.


Few people have heard of Facioscapulohumeral Muscular Dystrophy, and many affected individuals don’t even know they have the condition because misdiagnosis is common.


FSHD is one of the most prevalent forms of muscular dystrophy, affecting over 1 million people worldwide. By raising awareness, we can improve diagnosis, advocate for research, and bring communities together.

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Physical Address

Kingfisher House, 39A Kingfisher Road, Fourways 2191 Johannesburg,

South Africa

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

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Rare Diseases South Africa

NPO 120-991

Kingfisher House, 39A Kingfisher Road, Fourways, 2191, South Africa 

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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