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FOP Awareness Day
Thu, 23 Apr
|Online Platforms
FOP Awareness Day is observed annually on April 23 to raise awareness of fibrodysplasia ossificans progressiva, a rare genetic disorder that causes soft tissues to gradually turn into bone.
Time & Location
23 Apr 2026, 00:00 – 23:59
Online Platforms
About the Event
Awareness Day, was established to educate the public about fibrodysplasia ossificans progressiva (FOP), one of the rarest and most disabling genetic conditions, affecting fewer than 1,000 people worldwide. The day highlights the importance of research, support for affected individuals, and the search for a cure. The date, April 23, commemorates the discovery of the ACVR1 gene, which is responsible for FOP.
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