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International Pompe Day

Wed, 15 Apr

|

Online Platforms

International Pompe Day is observed annually on April 15 to raise awareness of Pompe disease and support the global community affected by this rare genetic disorder.

International Pompe Day
International Pompe Day

Time & Location

15 Apr 2026, 00:00 – 23:59

Online Platforms

About the Event

International Pompe Day aims to increase global awareness of Pompe disease, a rare genetic disorder that causes progressive muscle weakness, breathing difficulties, and heart complications due to glycogen accumulation in cells (glycogen storage disease type II). The day emphasizes early diagnosis, treatment, and community support, with the slogan “Together We Are Strong” highlighting the unity and resilience of patients, families, and advocates.

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Physical Address

Kingfisher House, 39A Kingfisher Road, Fourways 2191 Johannesburg,

South Africa

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

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Rare Diseases South Africa

NPO 120-991

Kingfisher House, 39A Kingfisher Road, Fourways, 2191, South Africa 

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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