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Moving Towards a South African Rare Disease Action Plan

Mon, 26 Oct

|

Hotel Sky Sandton

Help shape South Africa's first coordinated Rare Disease Action Plan: one day, one shared goal.


Registration is closed
Moving Towards a South African Rare Disease Action Plan
Moving Towards a South African Rare Disease Action Plan

Time & Location

26 Oct 2026, 08:30 – 17:00

Hotel Sky Sandton, 150 West Street Corner West Street and, Maude St, Sandown, Sandton, 2031, South Africa

About the Event

South Africa is home to an estimated 3 million people living with a rare disease.


RDAI, in partnership with Rare Diseases South Africa, is convening a national multi-stakeholder workshop to begin developing the country's first coordinated Rare Disease Action Plan, connecting South Africa's context to the WHO's Global Action Plan on rare diseases (WHA78.11, adopted May 2025).


The day brings together patient organisations, clinicians, researchers, funders, the pharmaceutical and life sciences industry, regulators, the National Department of Health and the WHO South Africa Country Office. Together we'll review the current landscape, work through structured discussions, and begin identifying shared priorities and next steps for South Africa.


Tickets

  • In Person - Hotel Sky, Sandton

    Full-day access to the workshop on Monday, 26 October 2026 at Hotel Sky, Sandton. Includes registration from 08h30, all sessions, and catering for the day. Self-funded, not commercially sponsored.

    R 850,00

    Sold Out
  • Virtual Attendance - MS Teams

    Please note this entry is for virtual participation only. This is a workshop style event, and the workshop section may be limited for online users.

    R 199,00

    Sold Out

This event is sold out

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Physical Address

Kingfisher House, 39A Kingfisher Road, Fourways 2191 Johannesburg,

South Africa

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

©2025  Rare Diseases South Africa NPC

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Rare Diseases South Africa

NPO 120-991

Kingfisher House, 39A Kingfisher Road, Fourways, 2191, South Africa 

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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