Moving Towards a South African Rare Disease Action Plan
Mon, 26 Oct
|Hotel Sky Sandton
Help shape South Africa's first coordinated Rare Disease Action Plan: one day, one shared goal.
Time & Location
26 Oct 2026, 08:30 – 17:00
Hotel Sky Sandton, 150 West Street Corner West Street and, Maude St, Sandown, Sandton, 2031, South Africa
About the Event
South Africa is home to an estimated 3 million people living with a rare disease.
RDAI, in partnership with Rare Diseases South Africa, is convening a national multi-stakeholder workshop to begin developing the country's first coordinated Rare Disease Action Plan, connecting South Africa's context to the WHO's Global Action Plan on rare diseases (WHA78.11, adopted May 2025).
The day brings together patient organisations, clinicians, researchers, funders, the pharmaceutical and life sciences industry, regulators, the National Department of Health and the WHO South Africa Country Office. Together we'll review the current landscape, work through structured discussions, and begin identifying shared priorities and next steps for South Africa.
Tickets
Moving Towards a South African
Full-day access to the workshop on Monday, 26 October 2026 at Hotel Sky, Sandton. Includes registration from 08h30, all sessions, and catering for the day. Self-funded, not commercially sponsored.
R 850,00
Total
R 0,00