Rare Diseases Access Initiative: Stakeholder Symposium

Key discussion points: 

• Research
• Access to treatment
• Co-Ordination of Care
• Access to services
• Data collection 
• Collaborative research

Guest Speakers include: 

• Dr Nicholas Crisp - Deputy Director General: National Health Insurance
• Dr Natalie Mayet - Deputy Director National Institute for Communicable Diseases
• Dr Helen Malherbe – Director Of Research – Rare Diseases South Africa