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Spinal Muscular Atrophy Awareness Month

Fri, 01 Aug

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Spinal Muscular Atrophy Awareness Month is to raise awareness of the condition caused by the deficiency of a motor neuron protein called SMN and other rare forms of Spinal Muscular Atrophy (SMA) that stem from chromosome mutations.

Spinal Muscular Atrophy Awareness Month
Spinal Muscular Atrophy Awareness Month

Time & Location

01 Aug 2025, 00:00 – 31 Aug 2025, 23:50

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About the Event

Spinal Muscular Atrophy Awareness Month is observed each August to raise awareness of the condition caused by the deficiency of a motor neuron protein called SMN and other rare forms of Spinal Muscular Atrophy (SMA) that stem from chromosome mutations. SMA is a hereditary neurological illness that inhibits voluntary muscle action, leading to gradual muscular weakness and atrophy. Efforts to mark Spinal Muscular Atrophy Awareness Month are underway to increase awareness of this rare genetic disease and raise funds to battle it. The public is largely unfamiliar with SMA, and even physicians and other healthcare providers have a limited understanding of it.

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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

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Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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