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World CDKL5 Awareness Day

Wed, 17 Jun

|

Online Platforms

World CDKL5 Awareness Day is celebrated to raise awareness about CDKL5 Deficiency Disorder (CDD). The community comes together to promote awareness, research, collaboration, and fundraising efforts.

World CDKL5 Awareness Day
World CDKL5 Awareness Day

Time & Location

17 Jun 2026, 00:00 – 23:50

Online Platforms

About the Event

World CDKL5 Awareness Day is celebrated to raise awareness about CDKL5 Deficiency Disorder (CDD). The community comes together to promote awareness, research, collaboration, and fundraising efforts. The day is also marked by the official ribbon color of lime green, which symbolizes the disorder.

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Physical Address

Kingfisher House, 39A Kingfisher Road, Fourways 2191 Johannesburg,

South Africa

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

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Rare Diseases South Africa

NPO 120-991

Kingfisher House, 39A Kingfisher Road, Fourways, 2191, South Africa 

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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