MEET THE TEAM

Rare Diseases SA is fortunate to have an incredible team who are committed to being a voice for vulnerable communities – working tirelessly to help us fulfill our mission of bridging the gap to improved quality of life for those impacted by rare diseases through advocacy and empowerment.

KELLY “Floss Dance Enthusiast” DU PLESSIS

CEO AND LEAD PATIENT ADVOCATE


Quote Kelly Lives By: "The essence of global health equality is the idea that something so precious as health might be viewed as a right." ~ Paul Farmer

HELEN “Is there a graph for that?” MALHERBE

DIRECTOR OF RESEARCH AND EPIDEMIOLOGY

Quote Helen Lives By: “You can have data without information, but you cannot have information without data.” ~ Daniel Keys Moran

SHEVAUN “Horse Lady” MCCREEDY

COMMUNICATIONS & RARE ACTIVIST EVENTS MANAGER

Quote Shevaun Lives By: “Don’t limit your challenges; challenge your limits.” ~Jerry Dunn

NICOLA “Where’s My Box?” DU PLOOY

PROGRAMME MANAGE

Quote Nicola Lives By: “We are not our possessions, but we are the accumulation of everything we’ve seen, the things we’ve done and the places we’ve been.” ~ Dr. Thomas Gilovich

NOMSA “Three Sugars” MTSHALI

PATIENT COMMUNITY AND RARE ASSIST MANAGER

Quote Nomsa Lives By: “We will only understand the miracles of life fully when we allow the unexpected to happen, don’t be scared to take risks.” ~ Paulo Coehlo

MEGAN “Choose Kindness” HUNTER

OFFICE ADMINISTRATOR AND RARE BEAR PROJECT MANAGER

Quote Megan Lives By: “Carry out a random act of kindness, with no expectation of reward, safe in the knowledge that one day someone might do the same for you.” ~ Princess Diana

NATASHA “Is It On Trello?” NASS

BRAND MANAGER

Quote Natasha Lives By: “You have brains in your head. You have feet in your shoes. You can steer yourself any direction you choose. You’re on your own. And you know what you know. And YOU are the one who’ll decide where to go…” ~ Dr. Seuss

JEN “Coffee Fanatic” MCLEAN

COMMUNITY RADIO LIASON

Quote Jen Lives By: “Imperfection is beauty, madness is genius and it’s better to be absolutely ridiculous than absolutely boring.” ~ Marilyn Monroe

MARILEY “I'll fix it” LIEBENBERG

FUNDRAISING SPECIALIST

Quote Mariley Lives By: “It's not what we get, but what who we become, what we contribute...that gives meaning to our lives.” ~ Tony Robbins

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TELEPHONE  +27 72 476 7552

EMAIL ADDRESS hello@rarediseases.co.za

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