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meet the team

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KELLY “Floss Dance Enthusiast” Du PLESSIS

CEO AND LEAD PATIENT ADVOCATE


Quote Kelly Lives By: "The essence of global health equality is the idea that something so precious as health might be viewed as a right." ~ Paul Farmer

HELEN “Is there a graph for that?” MALHERBE

DIRECTOR OF RESEARCH AND EPIDEMIOLOGY

Quote Helen Lives By: “You can have data without information, but you cannot have information without data.” ~ Daniel Keys Moran

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SHARON “Smoothie Operator” PRUSS

OPERATIONS

Quote Sharon Lives By: “We can’t heal the world today but we can begin with a voice of compassion, a heart of love, an act of kindness.” ~ Mary Davis

NOMSA “Three Sugars” MTSHALI

PATIENT COMMUNITY AND RARE ASSIST MANAGER

Quote Nomsa Lives By: “We will only understand the miracles of life fully when we allow the unexpected to happen, don’t be scared to take risks.” ~ Paulo Coehlo

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NATASHA “Is It On Teams?” NASS

BRAND MANAGER

Quote Natasha Lives By: “You have brains in your head. You have feet in your shoes. You can steer yourself any direction you choose. You’re on your own. And you know what you know. And YOU are the one who’ll decide where to go” ~ Dr. Seuss

HLUMELA “Rooibos Blender” TSHIJILA

COMMUNICATIONS MANAGER

Quote Hlumela Lives By: “The universe responds to your frequency. It doesn’t recognise your personal desires, wants or needs. It only understands the frequency in which you are vibrating at"

~ Author Unknown

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JEN “Coffee Fanatic” MCLEAN

COMMUNITY RADIO LIASON

Quote Jen Lives By: “Imperfection is beauty, madness is genius and it’s better to be absolutely ridiculous than absolutely boring.” ~ Marilyn Monroe

CARLA “Does That Come With Fries” PILLAY

RARE DISEASE DAY SUPPORT

Quote Carla Lives By: “Only by giving are you able to receive more than you already have.” ~ Jim Rohn

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MISSY “Not Elliot” HAYES

MARKETING AND COMMUNICATIONS

Quote Missy Lives By: "At first dreams seem impossible, then improbable, then inevitable" ~ Christopher Reeves

MARIANNE “Self-Confessed Coffee Snob” GOMES

GENETIC COUNSELLOR AND RESEARCH ASSISTANT

Quote Marianne Lives By: “He who knows others is wise. He who knows himself is enlightened” ~ Lao Tzu

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