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User Generated




The undersigned subject of stories, quotes, photographs, recordings, film, or other personal biographical information (collectively “Materials”) hereby grants to the Rare Diseases South Africa, a non-profit service and advocacy organization located in Johannesburg, South Africa, including its successors, sponsors, employees, distributors, licensees and assigns (collectively, the “Publisher”), the unrestricted permission, right and license to use the Materials and to reproduce, exhibit, broadcast, advertise and exploit all or any part of the Materials in any media chosen by the Publisher.

The undersigned consents to use of the Materials in any story, quote, photograph, recording or other media produced by or on behalf of the Publisher. The undersigned is aware that the Materials may be published by the Publisher in print or in electronic publications such as on the Publisher’s website(s) and may be released to news media and others relating to the promotion or publicizing of the activities of the Publisher, including advocacy activities.

The undersigned grants permission to use his/her name or likeness and biographical data relating to publication of the Materials, and/or the use of his/her personal story or quote under a pseudonym.

The Publisher shall own any copyright and all other intellectual property rights in the Materials.

The undersigned waives any demand for compensation and waives any claim to any moral rights or any violation of rights to privacy, publicity or confidentiality under any statute or common law relating to any use of the Materials.

We may invite you to post content on the Service, including your comments and any other information that you would like to be available on the Service, which may become public (“User Generated Content”). If you post User Generated Content, all of the information that you post will be available to authorized personnel of Rare Diseases South Africa. You expressly acknowledge and agree that we may access in real-time, record and store archives of any User Generated Content on our servers to make use of them in connection with the Service. If you submit a review, recommendation, endorsement, or other User Generated Content through the Service, or through other websites including Facebook, Instagram, Google, and other similar channels, we may share that review, recommendation, endorsement or content publicly on the Service

The Publisher proposes to act in reliance on this Consent, therefore the undersigned declares it to be irrevocable, and releases the Publisher from any and all claims, liability, actions or demands whatsoever in connection with the use of the Materials as provided in this Consent.

By signing this document, I hereby consents to the use of my personal information and/or Materials and confirm that:

  • the information and/or Materials is supplied voluntarily, without undue influence from any party and not under any duress;

  • the information and/or Materials which is supplied herewith is required for the purposes of this agreement and that without such information or Materials, Rare Diseases South Africa cannot enter into an agreement with me.

I acknowledge that I am aware of the following rights with regard to such personal information and Materials which is hereby collected. The right to:

  • access the information and Materials at any reasonable time for purposes of rectification thereof;

  • object to the processing of the information and/or Materials in which case this agreement will terminate in accordance with the provisions contained herein;

  • lodge a complaint to the Information Regulator.

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